what has gotten your lyme disease into remission?
Hi friends! Has anyone experienced a Herx reaction before? I am starting treatment for likely Lyme and Mold Toxicity. I was wondering if anyone has been through this and how they combatted their Herx symptoms? I need some tips! Thanks!
Hello! I have just joined because I am finally on the other side of a long hard journey back to health. I hope I can encourage some of you to feel better and share what I have learned along the way. I was diagnosed with SLE, UCTD, Sjogrens, Hashimotos, POTS, hypertension, anxiety & depression, a TBI and lyme disease. those are the main ones - you lose track of the labels after a while. If anyone has a question please reach out!
Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections Syndrome
Mast cell activation syndrome
Contact with and exposure to mold
anyone else feel like it’s been much harder to socialize since getting sick? now, when I do anything that takes a lot of energy like socializing, it’s as if i don’t have access to as much of my brain as i normally would. the brain fog, overstimulation, my memory tanks all of sudden, and the way i get on autopilot makes me so embarrassed sometimes. it’s hard to make a genuine connection when i’m always anxious and in that mode.
Hello! out of curiosity, is anybody treating Lyme and coinfections with herbs and antibiotics at the same time?
Hi guys. My expertise is in Lyme disease, heavy metal toxicity, alternative therapies, natural treatments as well as knowledge in mold poisoning and mental health. I am writing this in case anyone is in need of help with any of these subjects, I would be able to point you in the right direction and even possibly give you a list of doctors (I am not afflicted in any way). I know the frustration and overwhelm as well as how important it is to act quickly and would be happy to help anyone. My Story: I had Lyme Disease untreated and undiagnosed for 13-15 years before I was finally diagnosed in 2017 after I had been bitten by a tick on Mother’s Day a few weeks after I loss my 8-month pregnancy and held a funeral for him. 2017 was a tough year. I was told that I had a new infection as well as a more advanced, late stage infection going back many years. This made sense to me as I was always a hiker and the acute symptoms I experienced after the 2017 tick bite were identical to the symptoms I had 15 years earlier. So, I saw an Infectious Disease Dr who had me on antibiotics for 6 months, which only made my condition worse. I still tested positive for an active infection, which came back raging a week after I stopped treatment. I realized that I wasn’t getting the help I needed from doctors and I was on my own. For the next 2 years, I made it my full-time job to become an expert at Lyme so I could save myself. I read hundreds of studies, took notes, found protocols and studies that showed the effectiveness of certain treatments. I began taking these treatments at home and soon began to get better but still wanted a doctor to overlook. I finally found a Lyme Literate Medical Doctor who treated with natural protocols and/or antibiotics, and I chose the natural route. I felt more at peace having her tell me the treatments I was using was exactly what she recommends. Now that my insurance no longer covers her appointments, I am in a place where I know far beyond what i need to and altho I don’t have a degree, I know more about this subject than 99.999% of doctors. Lyme disease is easily treated if taken care of immediately, but if left untreated, this stealth pathogen is capable of things that amazes me.. as much as I despise it, it’s also pretty wild what it’s capable of doing to prevent its own demise. So yea.. any questions.. I’d be happy to help. Common Protocols: - Buhner - Zhang - Cowden - Byron White (my fav)
Systemic Lupus Erythematosus (SLE)
Disorder of Autonomic Nervous System
I am new here and have battled Lyme disease and so many more health issues caused by the lyme. I now have active systemic lupus attacking my organs - lungs especially and I am scared. Want to hear if anyone has done anything to help stop the damage. Like stem cell treatments or Psilocybin mushrooms are a few I am thinking about trying
after 28 yrs of misdiagnosed Lyme, STARI, RMSF along with co-infections I had the best 2.5 years of my adult life being 85 % symptom free after 3 /3 months stint of IV antibiotics. Here I am sick again after being reinfected by another lone star tick ....STARI
I thought it had gone away, but I'm starting to feel the same cloudiness that I remember creeping back. I feel like I should be escalating out of the care of a general practitioner, but I don't know what I should be looking for, or if my insurance can cover it
I am almost completely disabled by this illness. My husband is frustrated because of how little I can do. Any suggestions to help him cope and accept my limitations? Thanks.
Hello all! I've been on a rather long Lyme journey, and since Lyme disease looks so different in different people, I wanted to ask about those of you with Lyme who got vaccinated. Of course sometimes it's hard to know for sure, but has anyone experienced any negative effects from getting vaccinated? Anything that people with more healthy and strong systems didn't experience? Thanks!
Are you in remission. If so when was your last flare?
How have you managed symptoms and said okay to a different lifestyle?
I've been dealing with chronic Lyme for years. Only officially diagnosed in 2020 after years of "we aren't quite sure why you're sick". My current Lyme doctor is at a loss as to what to do with me. I'm deathly allergic to multiple antibiotics so our options are limited. Tired herbal with no success. Any suggestions and/or specialists you'd recommend? I'm willing to go anywhere in the US to get the right help, but am based in the northeast.
Does anyone else feel like a tired potato even after some of your Lyme indicators have gone down? 🥔
I'm not sure if my symptoms are actually getting worse or if I'm just more aware of them now that I've actually been diagnosed. I've struggled with symptoms for probably around 2 years now but only got diagnosed last month. I thought I was just lazy and/or weak and that I just wasn't taking care of my body but everything makes sense now that I know what it is. I just got off 2 weeks of treatment but I feel like it just made everything worse.
Hi I was wondering if anyone else with Lymes, Bartonella or Erlichia also has trouble with memory? Especially with directions, I'm so horrible with directions it's really embarrassing when people expect me to kno directions and I dont!
I have severe pain in my legs. is this something that happens with Lyme? I was recently diagnosed with it.
I'm taking some medicine to kill off the lyme bacteria that's been in my system for years. it makes me feel sick in the way that feels similar to a fever, but my temperature never gets over 99. I get frustrated because I have internal symptoms that don't show on the outside enough for me to even know what treatment I should try to get
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)