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Piper2022

554d

I am almost completely disabled by this illness. My husband is frustrated because of how little I can do. Any suggestions to help him cope and accept my limitations? Thanks.

Top reply
    • Tick

      553d

      @lovelylo nobody wants to be sick

    • Piper2022

      552d

      Thank you so much, Nat_Nat. When he gets angry, I'm too afraid to stand up for myself. And I feel so guilty for not doing more. We've been fighting this since Dec 1998. I understand why he's frustrated,but I often wish he'd just let me sick. He complains that I'm not doing enough to get better. I'm not,but I'm trying,and I wish he would acknowledge my efforts.😥

    • Piper2022

      552d

      Thank you all for your replies. The sad thing is, he does know what I'm dealing with. He thinks that I need to push myself through it more. Nat_Nat, can you give me some examples please?

      • Nat_Nat

        552d

        @Piper2022 I think it depends on what kind of tasks you enjoy. My mother is my primary caretake with my illness even though I'm not a minor anymore. I make meals/snacks when she's busier or I clean something at my own pace if she hasn't gotten to it. There are little ways to show you are caring for someone that is caring for you. That being said, I'm not sure I like the idea that your husband thinks you need to push through it. That way of thinking negates how much work you put up in deal with your illness and can actually make things worse if you are neglecting yourself and ignoring your needs. Please message me if you need some support.

    • Nat_Nat

      553d

      A lot of frustration about chronic illness comes from a lack of flexibility. Just because you are disabled physically doesn't mean you are completely incapable/incompetent. I think you and your husband need to find some tasks that you can complete and be more adaptable in your shared existence.

    • Tick

      553d

      He needs to read about it. If he's frustrated he obviously doesn't know anything that you're dealing with. Let him read the statements from this site. I think there's stories on a site called lyme.org too

      • lovelylo

        553d

        @Tick exactly!!! my partner sometimes gets a little frustrated but then always realizes it’s not fair for him to be frustrated. we are a team- we have to work together not against each other!!

        • Tick

          553d

          @lovelylo nobody wants to be sick

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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