See Alike in...

Alike App

Browser

BrainTrainer

606d

Hello! I have just joined because I am finally on the other side of a long hard journey back to health. I hope I can encourage some of you to feel better and share what I have learned along the way. I was diagnosed with SLE, UCTD, Sjogrens, Hashimotos, POTS, hypertension, anxiety & depression, a TBI and lyme disease. those are the main ones - you lose track of the labels after a while. If anyone has a question please reach out!

    • littlefrog

      587d

      I’d love to know what your journey has been like—what the worst symptoms were and how you treated them, what other therapies may have been included, how long it took you to feel somewhat recovered. I am suffering from lyme and sjogren’s and they have ruined my life. I am desperate.

      • BrainTrainer

        583d

        @littlefrog Believe me I understand. I would take EFAs - I like vectomega bc it doesn’t give you the fish burps plus an Omega 7 to help with saliva and dryness for sjogrens. On extreme flare up days i used to take tramadol to modulate the way brain interpreted pain and elevate my mood bc i had severe systemic pain, fatigue, anxiety & depression. Tramadol has a bad rap with FDA but it’s not much more toxic to body as Tylenol. Please read these two books and feel free to ask me about their protocols. One of the docs is a personal friend. From Fatigued to Fantastic (Teitelbaum) & Toxic (Nathan). See if you are in mold. get yourself and living space tested. consider allergies - inhalant, injectant, ingestant & contactants (things you touch or get on your skin) - lessen toxic load - use the Think Dirty App if needed. Things like Tide detergent are the WORST. The obvious like wheat, dairy, etc. Pesticides, bug bites etc. While taking these into consideration look at your histamine responses - maybe try claritin or pepcid. also increase C and take quercetin. The big guns game changers for me have been - Hyperbaric Oxygen (deep dives), NeurOptimal training (i bought my own machine to use) and Cell Core supplements.

        • littlefrog

          583d

          @BrainTrainer thank you so much for your detailed response. I didn’t find much help with hyperbaric oxygen but have never tried neuroptimal training. I am getting tested for mold right now

      • Libby123

        584d

        @littlefrog i would also love to know, lyme has ruined my life as well

    • Jrsb511

      605d

      Welcome I've done a similar journey

      • BrainTrainer

        583d

        @Jrsb511 Bless you - you’re a strong and vibrant soul then!

    • Hockeyfan

      606d

      Welcome! Sounds like you have been through a lot! So glad you are on the other side of your journey. Did you find anything that helps with POTS? My daughter has that and hashimotos.

      • BrainTrainer

        583d

        @Hockeyfan Sorry it’s taken me a long time to respond! I had forgotten i downloaded this app! POTS medication that helped reset the ADH issue with autonomic nervous system dysfunction for me was desmopressin- used off label for POTS.

    • Sunflower128

      606d

      ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion