Struggling with POTS and Gastroparesis: Need Advice on Eating

Does anyone else with POTS struggle with gastroparesis and nausea to the extent that you can barely eat at all? I have a pretty bad eating disorder and have lost a lot of weight because I never feel hunger, no matter how little I've eaten, and I have trouble consuming much of any food that isn't a liquid. Any advice on how to enable your body to eat more or what foods are easy to prepare and swallow safe foods for you would be great.

Concerned about Gastroparesis Symptoms - Need Advice

I feel extremely full even after eating very little. However, I don't throw up. I have to spend a lot of time laying down and recovering after a meal. Could this be a sign of gastroparesis?

Concerns about Diabetes Management

Are these related to your diabetes?

How much alcohol can you drink before getting sick?

How much can you drink before getting sick? I drank one bottle of Mike's hard lemonade tonight after eating three donuts, and I feel nauseous. Should I wait a while after eating before I drink anything? Or should I just not drink at all? Recommendations?

Has anyone tried phenergan? Need advice.

Has anyone tried phenergan? If so have you had any reactions?

Managing Endometriosis with Gastroparesis and EDS

Any endo warriors with Gastroparesis and EDS? Most of my endo is on my bowels and I’m scared to let my endo grow too much because of the wear and tear GP and EDS can cause on their own. How did you approach the situation?

Recovering from GJ Tube Surgery

currently recovering from GJ tube surgery, it hurt really bad at first but now after two days it's tolerable but it's hard to sit up on my own. we're trying to figure out a good rate for my feeds so i don't get too nauseous. i have a farrell bag hooked up which helps my nausea too since the gas makes me nauseous super easily. i hope it heals well and quickly, and that my guts get used to the tube i can see the tube pulse to my heartbeat it's so strange o-O

Idiopathic Gastroperisis: Poor Treatment Outcomes?

has anyone been diagnosed with idiopathic gastroperisis and not had good outcomes with treatment

My Gastroparesis Journey: From Diagnosis to Surgery

hello alike, it’s been a while. I wanted to update you on what life has been like the past year (from what I remember.) my last post was about gastroparesis. I was hospitalized twice in april, each for a week, one week apart. I couldn’t keep anything in and nobody could tell me why. endocolonoscopy was clear, x-ray was clear, ETC. a few months pass, I had a GES (gastric emptying study) done in july after scheduling it in march. my GI was very unhelpful and so I went to one of the fellows who treated me in the hospital in april. he diagnosed me with gastroparesis (mild-moderate at the time,) he referred me to a GI/motility specialist in the practice that specializes in EDS and gastroparesis patients. it was a long wait, so we tried a medication in the meantime. summer passed, I was able to have a meal a day during vacation, but it quickly ended, even with the proper exercise and tips/tricks. I was on a liquid diet by the time fall came, and was slowly losing weight. I finally got in with the new GI in october, and he was very good. I got patches for nausea (scopolamine), dissolvable tablets for nausea (zofran/ondansteron), and we discussed every option available and left for me. I ended up going to get the opinion of a surgeon he knows very well and who used to work in the practice, he was also very good. we decided on one option first, and since it’s temporary, if it worked, we would do the surgery with a feeding tube placement. this decision made me nervous, but it was the last, the only option left. the day after thanksgiving, my new GI did the first procedure, and we scheduled the surgery (pyloroplasty with jejunostomy) for before christmas. at this point, I had lost 30+ since september, and it was december. the procedure did work some, and my surgeon was worried about my health and concerned for my wellbeing, so I got into the OR fast. I was in the hospital for 3-4 days, and the care was awful. my surgeon and surgical team sent me home early with my mom’s medical experience and I started my recovery there. there were complications with the supplies at first but it’s being handled. I’m currently trying to strengthen my body and muscles, socialize as much as I can, and interact with my surroundings (interests, activities, ETC.) I want to get back to where I was, by making more progress. with this gastroparesis fight, I’ve also had other battles. with family, with myself, with others. it’s been a lot to deal with, and I haven’t always done my best. some, if not most of my worst days were in 2022. I lost some family after my breakup with my abuser, but I also started testosterone, had top surgery, and am preparing for college. I’ve found some old friends and am making new ones. I’m going to appointments, I’m cleansing my space, and I’m letting myself rest, too. in time, I’ll heal from my trauma, I’ll be able to maintain my chronic illnesses/disabilities again, and I won’t feel so stuck (because I shouldn’t have to be the glue unless I want to!) so, I need you to know, these things don’t go away, no. sometimes they come back stronger, but you are not weak. we can level out the playing field, I think that might make it easier. one step at a time, in the right direction. and when they arrive, if they haven’t already, the right people will always be there for you through all of it and more, but most importantly you need to be there for yourself, too. that’s how it’ll happen. never forget that.

Looking for Suggestions for a Good Meal Replacement Drink

hi everyone! I'm currently in the process of being diagnosed with gastroparesis. I've lost just over 30lbs since August. I had to delay getting a test due to finding out I was pregnant. unfortunately, I did have a miscarriage and need to make a follow up with my doctor to get the test. in the mean time, I'm looking for suggestions for a good meal replacement drink (powder, or liquid) I'm desperate at this point and I need to do something in the mean time until I'm able to get back in with the doctor. something that tastes pretty decent and I'm a huge vanilla lover. any suggestions are appreciated❤️

Figuring Out My Food Sensitivities After GJ Tube Surgery

how can i figure out what foods my gut may be sensitive to? i am getting surgery for a GJ tube so i can finally have stable nutrition, but i do wonder if it's certain foods that are making my symptoms worse besides just gastroparesis & other stuff. i get gut pain a lot and i have been struggling with constipation since i was a baby, according to my mom. my plan for after surgery i am going to work on my nutrition and figure out what i need most and what sensitivities i may have. me and my family already eat organic, but organic alone isn't going to help any other food sensitivities besides non-organic ones like dyes and alike. if you've been on a similar path before i would love your advice 💙

Dealing with Hair Loss Due to Malnutrition

recently noticed i have a bald spot on the back of my head due to malnutrition from gastroparesis. my hair has been shedding a LOT for awhile now, but my hair has always been thick and i don't brush or wash my hair daily because i'm exhausted and didn't want more hair shedding. has anyone else experienced this? and if so how has trying to grow your hair back worked for you? i have my appointment with a surgeon for a GJ tube + GPOEM tomorrow so i'll see how that will go and hopefully get good nutrition sooner than later, i've been waiting for what feels like forever though.. :(

Cannabis for Gastroparesis: Does it Help?

People with gastroparesis, do you use cannabis/edibles/cbd and does it help or not help

Benefits and Risks of Feeding Tubes

Anyone with a feeding tube help me find out the benefits and risks with it? I read that you can aspirate and die from feeding tubes.

Nervous about upcoming GI surgery

we finally had an appointment with a GI surgeon who was recommended through an EDS clinic that took around 2 years of a waiting list to get into. he says that i can get a GJ tube + a G-POEM that's done with botox first before trying anything more permanent just incase it doesn't work out for me. im very nervous about surgery, but it's done in a minimally invasive way specifically endoscopic so there should be less wounds to worry about healing and hurting. i'm relieved to be able to get steady nutrition, but i am nervous about the pain and healing process and just medical anxieties in general. regular anxiety + medical PTSD has been so rough the past few years, but i am hoping this is a step forward finally at least even a baby step

Share Your Gastroparesis Diagnosis Experience

Research post! Please respond! What were some events that happened in your life when you got diagnosed with gastroparesis. Such as did you have viral illnesses then started having stomach trouble? A traumatic event? This will help me! Very important!!!!!

Need advice on liquid diet for GP, UC and Type 2 Diabetes

does anyone do the liquid diet with gp! my dr not my gi dr recommended it until i see my gi dr to get me through to kind of get things to settle down, but all she could say was smoothies! I am not sure what to put in them since I have uc, gp, and type 2 diabetes!

Anyone else struggling with gastroparesis?

can anyone relate with me on gastroparesis

Saying Goodbye to the Gastroparesis Community

I wanted to...I guess sort of say goodbye? To the gastroparesis community here. I was diagnosed with it in June. I last got sick in July, and stopped following the advice from my diabetes educator (the ONLY one who even gave me any that made the least sense, and the only one who actually knows anything about it, as he sees at least 1 GP patient per week) after only a couple of weeks. When I went back to him 6 weeks later and told him my story, he says it doesn't sound at all like GP, but like a beef sensitivity! I no longer eat more than a small amount of beef, and feel normal. I suspect I either do have mildly slow emptying (my tests showed it was slow, but not a heck of a lot), but normally without symptoms--so probably just normal for me--or when I was given the test it was a bad time, and my stomach was recovering from a bad fight with beef, and isn't normally slow. I can't verify it. Paying for another test at this point doesn't seem worthwhile. Anyway, I felt I should adjust my settings here to reflect this, and I will no longer match with some of the GP community. I will still keep GP in my mind, always hoping for decent treatments and a cure. It's a terrible diagnosis, and the one thing in my life I wouldn't wish on my worst enemy. I'm so sorry anyone ever has it.

Sole-source nutrition is hurting me, what do I do?

I am on sole-source nutrition (orally) and it really hurts. I’m scared it was the wrong choice, but I burned my last bridge with my PCP to get it. What do I do?