See Alike in...

Alike App

Browser

1stMayflowers

583d

I wanted to...I guess sort of say goodbye? To the gastroparesis community here. I was diagnosed with it in June. I last got sick in July, and stopped following the advice from my diabetes educator (the ONLY one who even gave me any that made the least sense, and the only one who actually knows anything about it, as he sees at least 1 GP patient per week) after only a couple of weeks. When I went back to him 6 weeks later and told him my story, he says it doesn't sound at all like GP, but like a beef sensitivity! I no longer eat more than a small amount of beef, and feel normal. I suspect I either do have mildly slow emptying (my tests showed it was slow, but not a heck of a lot), but normally without symptoms--so probably just normal for me--or when I was given the test it was a bad time, and my stomach was recovering from a bad fight with beef, and isn't normally slow. I can't verify it. Paying for another test at this point doesn't seem worthwhile. Anyway, I felt I should adjust my settings here to reflect this, and I will no longer match with some of the GP community. I will still keep GP in my mind, always hoping for decent treatments and a cure. It's a terrible diagnosis, and the one thing in my life I wouldn't wish on my worst enemy. I'm so sorry anyone ever has it.

Top reply
    • 1stMayflowers

      560d

      @xajhx23 I totally understand. The doctor who told me I had GP was horrible, and made me want to jump off a roof, in addition to how I felt physically. The depression was the worst for me. I found a thread where I described more about that plan. It's a LOT, and this dang app won't let me copy, but I did get a link. Try checking it out, and see if it makes sense. https://app.alike.health/app-links/post?post_id=ffd3664a-78ae-4af0-8a79-88c872960c60

    • 1stMayflowers

      563d

      I'm so sorry!! I wasn't able to test it myself, since I was misdiagnosed, but my diabetes educator--who sees a minimum of 1 GP patient each week--has a simple (at least it sounds simple--harder to DO) set of steps. I can't write it down right now, but I have posted it here before. I'll try to get back on later, but my memory SUCKS and I'm really busy right now, so it might be a while. But, quickly, look up belly massage for GP, and try to go for an easy walk (you are trying to get anything in your belly to move around, to help let any liquid out, to start), whatever you're able, but just to move.

      • xajhx23

        563d

        @1stMayflowers no problem I understand! I’ve been feeling so awful I don’t even want to get out of bed but I’ll try moving around. This whole thing caused me to be so depressed.

        • 1stMayflowers

          560d

          @xajhx23 I totally understand. The doctor who told me I had GP was horrible, and made me want to jump off a roof, in addition to how I felt physically. The depression was the worst for me. I found a thread where I described more about that plan. It's a LOT, and this dang app won't let me copy, but I did get a link. Try checking it out, and see if it makes sense. https://app.alike.health/app-links/post?post_id=ffd3664a-78ae-4af0-8a79-88c872960c60

    • xajhx23

      563d

      I just got diagnosed. I lost 50 pounds within a few short months. I’m all skin and bones. I just started meal replacements yesterday. I feel sick 24/7. I’m in bed most of the time. I don’t work anymore. It literally took my life away from me. If you have any advice please reach out! I could use it.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion