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StarrySouls

448d

we finally had an appointment with a GI surgeon who was recommended through an EDS clinic that took around 2 years of a waiting list to get into. he says that i can get a GJ tube + a G-POEM that's done with botox first before trying anything more permanent just incase it doesn't work out for me. im very nervous about surgery, but it's done in a minimally invasive way specifically endoscopic so there should be less wounds to worry about healing and hurting. i'm relieved to be able to get steady nutrition, but i am nervous about the pain and healing process and just medical anxieties in general. regular anxiety + medical PTSD has been so rough the past few years, but i am hoping this is a step forward finally at least even a baby step

Top reply
    • StarrySouls

      437d

      @BoomerangValentine thank you, i have hope that getting the GJ and G-POEM will help me get the energy and nutrients i need finally, im super nervous about surgery since this is the biggest surgery i've had since i was 7 and got my tonsils removed 😅 but hopefully recovery is smooth

    • Stretchy_Qxeer

      437d

      I have a GJ and it's saved my life. I haven't had the other surgery you mentioned but tube feeding has saved my life and I'm very grateful to have steady nutrition. Please reach out to me if you need someone to talk to about GI stuff or just anything.

    • BoomerangValentine

      447d

      I’m glad you were able to see a surgeon! Especially one that has experience with EDS. Last month I got a J tube placed and a pyloroplasty. So neither of the exact procedures you’re getting haha but similar, and I have had smooth recoveries and good results. I hope the same will be for you! I have had two rounds of botox in the past and found it helpful. I completely understand the anxiety and medical trauma. I really hope things go well and you get some relief. Good luck 💕

      • StarrySouls

        437d

        @BoomerangValentine thank you, i have hope that getting the GJ and G-POEM will help me get the energy and nutrients i need finally, im super nervous about surgery since this is the biggest surgery i've had since i was 7 and got my tonsils removed 😅 but hopefully recovery is smooth

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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