Need advice for newly diagnosed Gastroparesis

Hi I’m 18 and have been dealing with gastroparesis for quite a while now as a result of EDS and then later an abdominal surgery where I nearly lost my life and my doctor likely clipped my vagus nerve causing my health to deteriorate since then. I’ve gone through lots of medications and such and am going into the medical field which has helped my knowledge immensely! If you send me a chat I’d love yo talk and maybe help some!!!💗

I'm 19, have gastroparesis. Please feel free to talk to me. I now have a feeding tube but tried lots of different things that might work for you. Key things, low fiber diet (low fat might also help). Seeing if you have any intolerance. If solid food is an issue trying soft, puree and liquid diet. Oral nutrical supplements. Prokentic medication. Gently exercise and stress management (as not doing this can make it work). Further interventions include botox, and stimulator. Also managing any co occurring conditions such as hypermobility. Getting off opioid pain medication if possible as this slows your gi track.

Get a good gastro doctor and dietician. Mediterranean diet helped me a ton. I drink a ton of water everyday now too and it has helped a lot as well. I am on levisin and the results from it have been amazing. I always have nausea meds on hand and I have all three they usually use zofran, phenegran, and reglan so I have the option to choose the strength I need. It took a lot of testing to get me here and have the as needed meds prescribed but it was worth it. Mine was so bad I went into lactic acidosis on multiple occasions and ended up in the hospital. If you have any questions ask away. This diagnosis was miserable to get and treat

Hey! I’m so sorry you have gastroparesis - it is such an awful disease - but I hope the diagnosis helps you access treatment. Do you have a good GI doctor? There are many different meds - many used off label. Other options include botox injections, gastric pacemaker/stimulator, feeding tubes. A huge piece is diet. Many people can manage symptoms with just dietary changes. If you have access to a dietitian, they might be a good resource. I have tried so many things for my gastroparesis (meds, dietary changes, botox, clinical trials, feeding tubes). If I can help at all, let me know! I remember how scared and overwhelmed I was when I first got diagnosed, so I don’t want you to feel alone