Postural Orthostatic Tachycardia Syndrome (POTS)
Migraine with aura
Diffuse connective tissue disease
For those that are familiar with spoon theory: I definitely live by it. It has helped me commit to pacing myself on my bad days AND good days. It's become a point of pride for me to be able to say I feel like I have spoons over at the end of the day. It's also helped me explain how I manage my energy consumption to my partner. She got be a keychain with little spoons on them for Christmas two years ago so that I always have extra spoons on me, and now looks for spoonie merch everywhere we go. I'm trying to focus on the positive today, and spoon theory has definitely been a positive in my chronic illness journey. Since it's working well for me, I'm curious. oes anyone else finds comfort in having a metaphor to describe how chronic illness impacts energy? Have you found that it helps others understand? Or has it changed the way you understand yourself?
What tests were done to get your diagnosis? I'm waiting to get into rhuematologist. I had a positive ANA and the antibodies and on the tier SSA antibodies is what showed up. I've been looking at symptoms and a lot of it matches with this disease. But I'm curious of everyone else
Do any of you have severe knee pain as a result of your autoimmune problems? Did it start all of a sudden and get worse and worse? What meds have helped you? This is my worst symptom of my MCTD.
Has anyone been told they are terminal due to mctd and sle lupus? This is regarding my dgtr 28 yrs old she was diagnosed 7 years ago.
anyone out there that has UCTD? l was just diagnosed with the disease in February of 2021, Dr's are still studying it. They say it's rare but it seems as though l'm the only who has it! HELP!
Do you guys follow a specific diet? Anything you recommend for pain?
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Anxiety (Including GAD)