Just diagnosed with UCTD, feeling lost and alone

I've been diagnosed with UCTD since 2014! I've never met someone else with the same diagnosis so I'm glad I'm not alone dealing with it

I was diagnosed with others as well as the main UCTD. I was told UCTD is different than MCTD but I truthfully am not sure. My body aches all over daily and continuous. Some days more than others.

Also: original diagnoses was SLE Lupus.

My family member was diagnosed with UCTD. I have MCTD.

I have been under the care of a rheumatologist since 2016, too. I have been diagnosed with UCTD (I’ve also heard it called MCTD), and I possibly also have SLE, but that is typically harder to diagnose. To be honest, I think there are at least half a dozen different new, unnamed autoimmune diseases that are just getting ‘lumped’ into UCTD. They can’t call it fibromyalgia, because there are clear lab indicators of inflammation and bone/joint/organ problems, but they really don’t know what to call it or how to treat it. I have all the indicators of SLE, except the butterfly rash, therefore I have UCTD. 🤷‍♀️

I have UCTD I was diagnosed in May 2016