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optimistic

Updated 10mo ago

Just diagnosed with UCTD, feeling lost and alone

anyone out there that has UCTD? l was just diagnosed with the disease in February of 2021, Dr's are still studying it. They say it's rare but it seems as though l'm the only who has it! HELP!

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ShenNinja

2y

I have UCTD I was diagnosed in May 2016
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TrixNY

2y

I have been under the care of a rheumatologist since 2016, too. I have been diagnosed with UCTD (I’ve also heard it called MCTD), and I possibly also have SLE, but that is typically harder to diagnose. To be honest, I think there are at least half a dozen different new, unnamed autoimmune diseases that are just getting ‘lumped’ into UCTD. They can’t call it fibromyalgia, because there are clear lab indicators of inflammation and bone/joint/organ problems, but they really don’t know what to call it or how to treat it. I have all the indicators of SLE, except the butterfly rash, therefore I have UCTD. 🤷‍♀️
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NickGobes75

2y

UCTD and MCTD are two different diseases. MCTD is a specific overlap disease of lupus, myositis, scleroderma, plus RA and Sjögren’s. I might’ve missed one in there. UCTD is when you have symptoms but they do not fit any diagnosable criteria of the already named connective tissue disorders (RA, Lupus, etc). If that makes sense.
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KJWolf

2y

My family member was diagnosed with UCTD. I have MCTD.
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KJWolf

2y

Also: original diagnoses was SLE Lupus.
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ShenNinja

2y

I was diagnosed with others as well as the main UCTD. I was told UCTD is different than MCTD but I truthfully am not sure. My body aches all over daily and continuous. Some days more than others.
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PhoenixAsh

2y

I've been diagnosed with UCTD since 2014! I've never met someone else with the same diagnosis so I'm glad I'm not alone dealing with it

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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