Has anyone done the Invitae Autoinflammatory and Autoimmunity Syndromes Panel? I was diagnosed with fibromyalgia at a young age and I haven’t had luck with relief from anything except gabapentin. I met a woman with very similar experiences to me and she did this panel. It totally changed her treatment and gave her a much better start to finding what was wrong.
Malaise & Fatigue
Autoimmune disease, not elsewhere classified
Systemic Lupus Erythematosus (SLE)
Does anyone have any tips for having your first appointment with a rheumatologist? I’m nervous and don’t know what to expect!
I have been having foot pain and very sensitive to touch when I walk, outside of the other issues I've been having in the past. Now lately my feet are very sensitive and they get numb and tingly. I've been to a Rheumatologist, had nerve test done,and everyone says everything is fine..no nerve damage. Now they want me to see another specialist thinking it could be small fiber neuropathy. Has anyone experienced this?
is it normal to have pains out of no where so bad you dont want to use that part of your body? is it normal to get a bacterial infection an for it not to heal for months? well your vision change? is it part of the illness to have foggy vision off an on for just minutes at a time?
does anyone have issues with pain when swallowing or swollen lymph nodes, and could it be an autoimmune symptom?
has anyone had body aches to where their body shakes sorta like when your body is cold and you shiver?
I am Ana positive and double strained dna positive I haven’t gotten a diagnosis yet. I’m in a lot of pain have numbness nausea etc what can I do to easy the symptoms and help with getting diagnosed
How hard is it to get a celiac disease diagnosis?
my ana was positive and rnp was 1 80 does that mean I have early stage autoimmune disease, I've had joint aches,rash on my cheek bones and now my feet are very sensitive?
does anyone else follow their ana count? some doctors believe it means something, others don't. I have chronic pain daily in joints and muscles,
Does anyone else have attacks that are treated with prednisone?
The significance of online communities lies in the emotional support and understanding they provide, empowering patients to express their concerns, fears, and triumphs without fear of judgment. Such platforms foster a sense of belonging and camaraderie, helping patients navigate the complexities of their conditions and treatment options.
Anxiety (Including GAD)