See Alike in...

Alike App

Browser

CrazyCatPlantLady

628d

Just need to vent. Earlier this year my primary care physician made a referral for a rheumatologist. My understanding was that my pcp diagnosed me with lupus and the rheumatologist was going to treat said lupus. I’ve seen my rheumatologist and all of my blood results seem to indicate “a lupus picture” as she says, but she wants to try other things first, like b12 supplements and a sleep study and dermatologist, before pursuing lupus treatment. I understand not wanting to turn to the extreme immediately, but I’m worried about damage leaving things untreated (especially with my high sed rate and crp). Any words of encouragement or similar stories?

Top reply
    • everydaylivinglupus

      580d

      Def get a second opinion. I saw 3 rheumatologist in the very beginning of my diagnosis.

    • everydaylivinglupus

      580d

      Def get a second opinion. I saw 3 rheumatologist in the very beginning of my diagnosis.

    • Anna1991

      625d

      Have they done a ana blood work ? That tells them everything

      • CrazyCatPlantLady

        625d

        @Anna1991 positive Ana and ds dna

      • Anna1991

        625d

        @Anna1991 Best thing to do is stay active and don’t stress

    • Goldeen

      626d

      definitely try a second opinion! Maybe look into Rheums that are Lupus Specialists and have most experience with Lupus patients

    • Annye

      628d

      Hi!.. I would get a second opinion, try a different rheum. The first rheum i went too said I needed a sleep study too.. I had a second opinion and the new rheum didn’t understand why he was asking for a sleep study.

      • CrazyCatPlantLady

        628d

        @Annye thanks! I was wondering that too

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion