Struggling with SLE Symptoms and Ignored by Rheumatologist

mad.city

338d

I've been officially diagnosed with SLE for 2 years. Although my rheumatologist says it's "controlled" based on my labs I still face a lot of symptoms. Anyone else experience this when 1st diagnosed? My rheumatologist said it was all in my head.... asked me if I was having anxiety... just ignoring all my new symptoms.

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Systemic Lupus Erythematosus (SLE)

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    • nubiansunflwr

      320d

      Definitely switch rheumatologists I had a doctor just like that & it led to my lupus attacking my eyes and the development of Sjorgens. A big thing that’s helped me when dealing with my lupus is having a good relationship with all of my doctors especially my rheumatologist and nephrologist. You need people that understand you & make you comfortable because lupus isn’t something that can be mismanaged. Take a breather & do a little research I promise there’s physicians that’ll take better care of you 🤎

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    • DanDan

      337d

      ??? Yikes I mean my recommendation is to switch rheumatologists if you can

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    • Frapples

      321d

      I finally got a referral to see a rheumatologist and he did labs. Said I have lupus but the labs say it can't be causing my symptoms and that I'm S.O.L. I'm looking for a new one 🙃

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    • Haleymichele

      321d

      I got diagnosed with SLE in 2019 and I still struggle everyday

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    • nubiansunflwr

      320d

      Definitely switch rheumatologists I had a doctor just like that & it led to my lupus attacking my eyes and the development of Sjorgens. A big thing that’s helped me when dealing with my lupus is having a good relationship with all of my doctors especially my rheumatologist and nephrologist. You need people that understand you & make you comfortable because lupus isn’t something that can be mismanaged. Take a breather & do a little research I promise there’s physicians that’ll take better care of you 🤎

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