See Alike in...

Alike App

Browser

Anigma

720d

Has anyone been diagnosed with lupus for years to have doctor say you may not have it?

Top reply
    • carolanne

      632d

      You can have false negatives and false positives lupus pretending it is so many different things doctors take into account symptoms and blood work. The one doctor after years after being told yes. I would question that. I was send to one doctor after being diagnosed and came to the door of the exam room didn't introduce himself look at me and said you don't have lupus I know what lupus patients look like. I got up told him if he said another word to me I would stick him in one of the cabinets Go to a doctor you are comfortable with.

    • carolanne

      632d

      You can have false negatives and false positives lupus pretending it is so many different things doctors take into account symptoms and blood work. The one doctor after years after being told yes. I would question that. I was send to one doctor after being diagnosed and came to the door of the exam room didn't introduce himself look at me and said you don't have lupus I know what lupus patients look like. I got up told him if he said another word to me I would stick him in one of the cabinets Go to a doctor you are comfortable with.

    • Frapples

      699d

      Not for lupus specifically. Mine was RA. I was told I probably had RA, see a pain manager and deal with it. 4yrs later and actual testing by a specialist, no RA 🤷‍♂️ He told me it's common with inflammation based disorders because of all the symptom overlap. Blood work doesn't usually pinpoint the exact problem, they need symptoms too. So it is wishy washy territory with new studies being done every year.

    • Rowboat

      714d

      Yes! I had my ANA tested back in high school (2015) and had been experiencing symptoms since 2010 and it came back normal. But since about 2017 I’ve developed the butterfly rash (unknowingly) and saw a dermatologist for my horrible acne and she diagnosed me with lupus. I told her I was already tested and it was normal and she said if I wasn’t currently having a flair, it wouldn’t show up. And now I’ll be seeing a rheumatologist later this month.

      • Rowboat

        714d

        @Rowboat Wait I kinda misunderstood your question. I wasn’t previously diagnosed but that’s my story with doctors saying I don’t have it.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion