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coolhippieaunt

2y ago

Struggling with Multiple Autoimmune Diseases and No Answers

i have endometriosis, POTS, hashimotos hypothyroidism, & celiac & now the Drs. want to run tests for lupus. i know it’s common to have autoimmune diseases overlap but not all of these are autoimmune and i’ve never gotten sufficient treatment or causation explanations. i typically just get told to go on a new medication and that my blood work looks weird but they don’t know what it means. i’ve never seen a doctor who seems to understand the connection between these conditions well enough to treat me. i’ve gone to specialists in each field- endocrinology, gynecology, cardiology, neurology, etc. but i just keep getting bounced around from specialist to specialist without any real help. i’m feeling really down & would appreciate any encouragement, tips, recommendations or support :( thanks guys <3

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DieselWeasel

2y ago

I would suggest finding the head of cardiology at a popular hospital. For example here in Connecticut it's Yale. Ask the cardiologist to make you a case study. They will gather a team and go over your records trying to find a connection and a treatment plan. You have to be persistent no matter how frustrating it is. It took me three hospitals and many doctors to even get my pots diagnosis.
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coolhippieaunt

2y ago

feel like i should clarify- i’m 22 and i started having problems when i was 7 so i’ve seen like every doctor in indiana basically. but please recommend any you know of that you love anywhere in the world. ya girl is desperate to feel better

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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