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Olivia.PatientPower

110d

Have you thought about how you're going to tell family, friends, and/or coworkers about your new diagnosis?

Top reply
    • CourageLoveLegacy

      100d

      I was diagnosed at 40yrs, so quite young with CLL. I have 3 young boys and decided to tell them within the first few days ... here's a blog a wrote about why and how I told them...https://www.courageloveandlegacy.com/p/how-do-i-tell-my-kids

    • CourageLoveLegacy

      100d

      I was diagnosed at 40yrs, so quite young with CLL. I have 3 young boys and decided to tell them within the first few days ... here's a blog a wrote about why and how I told them...https://www.courageloveandlegacy.com/p/how-do-i-tell-my-kids

    • Michele.PatientPower

      101d

      When first diagnosed it was such a shock that until I got my arms around it and understood what CLL was, I only shared it with my spouse. What about you?

    • Olivia.PatientPower

      110d

      Here's a Patient Power resource that may help: https://www.patientpower.info/chronic-lymphocytic-leukemia/answers-now-sharing-information-with-friends-family-and-coworkers-about-cll

      • Michele.PatientPower

        101d

        @Olivia.PatientPower @Olivia.PatientPower I feel a bit odd commenting on this program as I was the host. However, I learned much that I wish I had known at the start of my journey from our guest, guest - an MSW, Licensed Social Worker specializing in oncology. it is a total must view.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some people suggest telling those you feel comfortable with and explaining how the condition affects you. Others recommend setting boundaries during the discussion, asking others not to interject until you've fully explained your situation. It's also suggested to provide resources for them to learn more about the condition. However, it ultimately depends on who you're comfortable telling as it's a personal matter.

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