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KayCeeBee

749d

I got diagnosed 8 years ago when I was at a different job, and a lot of people knew there because I got the call saying I probably had MS while I was at work and I got upset. How do you decide who to tell and when to tell them? Some people at my current job know, but not as many. My nephew was only 6 when I was diagnosed, so he did t know at the time and he still doesn’t

Top reply
    • KayCeeBee

      675d

      When I was first diagnosed I got tired of telling people because I felt like i always ended up comforting them…When my now husband and I were dating I told him after only a couple of weeks because the pandemic was starting and I wanted him to understand why I had to be extra careful due to a compromised immune system.

    • KayCeeBee

      675d

      When I was first diagnosed I got tired of telling people because I felt like i always ended up comforting them…When my now husband and I were dating I told him after only a couple of weeks because the pandemic was starting and I wanted him to understand why I had to be extra careful due to a compromised immune system.

    • jdog54321

      742d

      It is a bit embarrassing to tell people at first. Especially people who try to help and don't have any idea what they are talking about. To those people, I just ignore. It is good to find people who can relate to you though. It was easy for people to know that something is wrong with me because of my slow speech and cognitive abilities. I think it's best just to get it out and people can do what they want with that information. Best of luck to you!

    • Goofy4Disney711

      744d

      I’m pretty open with my diagnosis around people, but it depends on who you’re comfortable telling. It’s a pretty personal thing, so I’d sit there and think about how it makes you feel knowing you have it. Then maybe make a list of people you’re ok with knowing.

    • Luvf00l

      745d

      I'd say tell anyone that you feel comfortable enough with. Some people don't know how to react and that's often bc they don't know much about MS. I think explaining it and how it affects you to the people you care to know about your condition is a good way to go. It can be difficult having a condition that is not completely visible so i will bring it up in conversation nonchalantly usually so people dont get awkward and think they need to apoligize for my condition. I am optimistic that most people will understand and empathize with you and your experience. Hope this helps

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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