Deciding Who to Tell About My MS Diagnosis

When I was first diagnosed I got tired of telling people because I felt like i always ended up comforting them…When my now husband and I were dating I told him after only a couple of weeks because the pandemic was starting and I wanted him to understand why I had to be extra careful due to a compromised immune system.

It is a bit embarrassing to tell people at first. Especially people who try to help and don't have any idea what they are talking about. To those people, I just ignore. It is good to find people who can relate to you though. It was easy for people to know that something is wrong with me because of my slow speech and cognitive abilities. I think it's best just to get it out and people can do what they want with that information. Best of luck to you!

I’m pretty open with my diagnosis around people, but it depends on who you’re comfortable telling. It’s a pretty personal thing, so I’d sit there and think about how it makes you feel knowing you have it. Then maybe make a list of people you’re ok with knowing.

I'd say tell anyone that you feel comfortable enough with. Some people don't know how to react and that's often bc they don't know much about MS. I think explaining it and how it affects you to the people you care to know about your condition is a good way to go. It can be difficult having a condition that is not completely visible so i will bring it up in conversation nonchalantly usually so people dont get awkward and think they need to apoligize for my condition. I am optimistic that most people will understand and empathize with you and your experience. Hope this helps