Struggling to Communicate My Leukemia Diagnosis

I can relate to the sense that my family doesn’t get it. When I told my parents and sister of my diagnosis they expressed zero concern and never checked back to see how I was doing. On the flip side I have incredible support from my husband and two grown sons.

I've found some great, easy-to-understand resources online and shared them with my loved ones. It helps bridge the gap between medical jargon and their understanding

For me it’s been a journey devoid of any real understanding by my family. The fact that I’m 3rd generation to be diagnosed with CLL and watch and wait scenario desensitises family from engaging too much with the fact that I have a blood cancer. That’s just how it’s been and is!

Hi! When I was diagnosed at age 45- 10 years ago- my husband did not really understand that this is really cancer! My dad thought it was an immune disease. Over time and many doctor visits along the way with countless talks with my husband, I feel I am getting better support. Please just continue to talk about your feelings and even cry on their shoulders! My new doctor is awesome as well. My old oncologist had poor bedside manners, so to speak.

I started using simple analogies. I compare my energy levels to a battery that doesn't charge to 100%—it makes it easier for them to understand why I'm so tired all the time.