Dealing with Hypokalemic Periodic Paralysis: Share Your Stories

hello! my sister had hypokalemic periodic paralysis and I've been wondering what some of your guys stories are with it. it's very rare and never met anyone else with it. she was diagnosed when she was a teen, it was a really hard struggle dealing with at first. the first time it happened Im 5 years younger than her and we were home alone. we both didn't feel good so we stayed sick at home from school. she fell in the hallway and was temporarily paralyzed and I had no idea what was happening so I called an ambulance and my dad came and went to the hospital with her. she was told to take potassium everyday but she could hardly remember to take it and it was so disgusting she would nearly throw up when she took it. I always felt so bad, but when she got a medical card for Muarjuana it helped her more than any medicine did. what is your guys stories on it???