Stories
Privacy
Download
See Alike in...
Alike App
Browser
1036d
Anyone with epilepsy out there? What type of epilepsy do you live with?
2
11
Share
Psychogenic non epileptic seizure
Epilepsy
Generalized pain
advertisement
315d
Hey, I have epilepsy although I've just come off of my meds as I've been seizure free for x amount of years. I live/d with absence seizures and tonic clonic seizures. I also forget the medical names. 💜
0
316d
I have sleep epilepsy I've forgotten the medical name, but I've also had 'brain spasms'? Where I'm in public places and can only physically say one word or sometimes the correct number of words but as if I'd pulled each one from a blended dictionary, never seen a doctor for it can anyone relate?
326d
i've had a bunch of different seizures throughout my life (gelastic, complex or simple partial, auras) i've had pretty much all of them growing up so i wasn't diagnosed with any kind of seizures. it's too many to diagnose lol
908d
I have mine in my sleep or few seconds after I wake up. They don't know why.
1
988d
Injury caused epilepsy I struggle with partial, complex and absent. I also have non epileptic seizures, and with a ton of testing ruled that I have both not one or the other. Worst part is not knowing for 5 years that I was having that issue I could have managed so much better just knowing.
989d
Started with Grand Mals my Junior year of high school. You can say the last 2 years kinda sucked. Had a partial right temporal lobectomy in 2006 which reduced me to absence seizures. From there it's just been hopping one drug to another to take me down to focal awares... 20 years worth of seizures always truly wants to make you ask what God's job was for you here...
996d
I had my first when I was 16 years old. Since then I’m under tegretol and I’m without any seizures for the past 1.5 years. My neurologist offered that if I reach 2 years of no seizure I might stop the meds and see how it goes
✋ hey it's not easy dealing with seizures I've had them now since I was 18 years of age they started and then I'm currently 34 years old and I'm still dealing with them I have what they call Grandma seizures or colonic tonic and no matter what I do I go for a long period of time without having any and then I have really really bad ones after a while without having them can anybody give me the solution to this problem because I have five children that I take care of I'm a single parent and I can't afford to be lying in a bed and pain because I had a seizure please somebody please help me
1029d
Sorry to hear that 😥 Are you taking any meds? Have you had more seizures?
1030d
Hi vicky! I've had it for about 14 years now. Started with vision auras. Then i had a grand mal one day :(
1035d
Hey! I am diagnosed with complex partial seizures epilepsy. I am treated with tegretol and luckily, I did not suffer from any seizures for the past two years now. How long have you been dealing with epilepsy and what has your journey looked like?
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions