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Neuroendocrine (Carcinoid) Tumors
by Alike Medical Team ∙ Updated on June 13, 2023
This group contains additional names: - Malignant carcinoid Tumor - Malignant Carcinoid Tumor of the Small Intestine - Malignant Carcinoid Tumor of the Large Intestine - Secondary Merkel Cell Carcinoma
Carcinoid tumor is a type of neuroendocrine tumor that grows from neuroendocrine cells. Neuroendocrine cells receive and send messages through hormones to help the body function. Neuroendocrine cells are found in organs throughout the body. This tumor can be either benign, non-cancerous, or malignant. Carcinoid tumors often grow very slowly. In children and young adults, carcinoid tumors are most often found in the appendix, called appendiceal carcinoid tumors, or in the lungs, called bronchial tumors. In adults, carcinoid tumors are most often found in the digestive tract. This tumor may spread to other parts of the body but does so more often in adults than children.
51 people with Neuroendocrine (Carcinoid) Tumors are on Alike.
Some people with carcinoid tumors have symptoms, but others don’t. The symptoms of carcinoid tumor depend on where the tumor is inside the body. If the tumor is located in your gut, you may feel abdominal pain, nausea or have diarrhea. If the tumor is in your lungs, you may experience trouble breathing, chest pain, wheezing and bloody cough. In rare cases, patients with carcinoid tumor may develop carcinoid syndrome which include feeling flushed, massive vomiting and diarrhea.
Your doctor will ask you about your symptoms and medical history, then he or she will perform a physical exam. The following tests will be done next: - *Blood and urine tests*- to check for any abnormalities. - *Imaging tests* such as *CT scan*, *MRI* or *PET scan* - *Biopsy*- a small piece of the abnormal tissues is taken out so it can be viewed under a microscope.
Treatment for each person will be unique, and may include the following: - *Surgery* – to remove the tumor - *Somatostatin analogs*- This medication may slow down the growth of the tumor when cancer cells have spread to other part of the body - *Targeted therapy*- drugs or other substances that are aimed to attack specific tumor cells.
☝ We provide information on prescription and over-the-counter medicines, diagnosis, procedures and lab tests. This material is provided for educational purposes only and is not medical advice, diagnosis or treatment.
National Institutes of Health ∙ World Health Organization ∙ MedlinePluse ∙ Centers for Disease Control and Prevention
☝ All information has been reviewed by certified physicians from Alike
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There are groups on Facebook for **Neuroendocrine Cancer** that also are very helpful.
Please get checked for lynch syndrome. You have to fight for your health. Go get 2nd or 3rd opinions. Where did your cancer originate? When was your diagnosis? What kind of treatment have you had? I have **Pancreatic Neuroendocrine Cancer** grade 3 stage 4. Diagnosed with Endometrial Adenocarcinoma (uterine)stage 4 in December 2021 but after tests came back it is 2 cancers. The uterine became type 2 grade 3 stage 1 (aggressive) and then I was diagnosed as having Pancreatic Neuroendocrine Cancer grade 3 stage 4 (also aggressive) I've had a lot happen since. Total Hysterectomy; Distal pancretectomy splenectomy, duodenum and gastric fundus removed; and right liver lobe removed. Not to mention two different chemos and a PRRT clinical trial
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