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Teee

501d

Does anyone experience arm pain with pots? I’ll have just an aching awful feeling that comes and goes it occurs in both arms not each time together though…

Top reply
    • Zebragirl

      475d

      I get bad headaches when I get dizzy

    • Zebragirl

      475d

      I get bad headaches when I get dizzy

    • Mcmeadow

      496d

      The nerves of your arm are directly connected to the nerves of your heart which means when you have heart problems (or POTS) it can cause arm pain. When people have heart attacks they often experience arm pain or numbness as well.

    • BlondeGirl1216

      499d

      I get aches in my joints but I am not sure if that's due to my hypermobility or the POTs.

    • Beetlejuul

      499d

      I get it in my collarbone but yes!

    • Ghost125

      499d

      Yessss I've been to the ER a few times for this also. No heart attack.

    • SuccinctAbilities

      500d

      Can’t be sure it’s not just joint/muscle pain from my EDS, but I absolutely have arm pain/heaviness that coincides with my POTS chest pain. (Yes, I know that sounds like serious heart attack symptoms, I have been to ER for this and confirmed that that wasn’t the case. Obvs seek emergency care if this is happening to you and differs from your baseline)

      • Teee

        500d

        @SuccinctAbilities I know it’s awful, :( I have also been to the er when I’ve had chest pain and arm pain and heart attack was ruled out! I’m not sure what’s going on

        • SuccinctAbilities

          493d

          @Teee I do know for me, at least once it was a pneumothorax (pneunomediastinum if we’re getting technical). Basically air in your chest where it shouldnt be, unfortunately pretty common for EDS folks, and can cause that arm pain. If you’re at risk for that (EDS and POTS are fairly common comorbidities), it might be worth bringing up to a GP/cardio-thoracic/pulmonary/whoever you’ve got on your team in the chest area 😅

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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