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Ladybugs

717d

Does everyone see Net Specialist or are you following by your family doctor? Thank you

Top reply
    • MTB1960

      679d

      @TriptychWitch so how are you doing ? Did you have your surgery ? If so I hope it went well How long ago where you diagnosed ? What stage and grade are you ?

    • TriptychWitch

      697d

      I am followed by an endocrinologist, oncologist and primary care doctor. I also have a team consisting of surgeon, gi doc, endocrinologist and net specialist in another state when surgeries have to happen. I use my primary care doc basically to gather all my records from all the different doctors into one place so my complete medical history is there.

      • MTB1960

        679d

        @TriptychWitch so how are you doing ? Did you have your surgery ? If so I hope it went well How long ago where you diagnosed ? What stage and grade are you ?

    • MTB1960

      707d

      What grade? Ki67? They can’t remove , so you have to have injections,?

    • Dragonrollz

      710d

      I see oncology, gi, general surgeon, colorectal surgeon & getting referred out to UCLA if my insurance ever sends out the letter of agreement 😅😅

      • MTB1960

        707d

        @Dragonrollz what was your NET diagnosis ?

        • Dragonrollz

          707d

          @MTB1960 I have colorectal…. Sitting nicely at the borderline which my doctors said isn’t normal but what can ya do 🤷🏻‍♀️

      • MTB1960

        709d

        @Dragonrollz isn’t it scary to have to wait for insurance approval ?

        • Dragonrollz

          709d

          @MTB1960 I think it’s more annoying than scary 😅😅 I have 4 specialist telling me I have to resect my rectum but I feel like my life is stuck on pause until the insurance company complies & I have 3 offices calling them 🤦🏻‍♀️🤦🏻‍♀️ like can we get this out of me already? Was your experience like that too??

    • MTB1960

      717d

      Seeing my Gi ( which is a waste ) I have a GI NET I then followed up with a UCSF ( small/low grade ) tumor specialist and an oncologist as well

      • Ladybugs

        717d

        @MTB1960 Thank you

    • MTB1960

      717d

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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