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MTB1960

761d

So when I go for my 1st NET bloodworkup Gastrin and B12 will be checked What will either high or low numbers show? ( no scans are recommended YET) My Gastric NET was fully resected in Feb this year Well differentiated grade 2 ( now upgraded from grade 1) :( Ki67 5% tumor was 0.2 cm Thank you for your answer

Top reply
    • TriptychWitch

      702d

      @MTB1960 sorry I've been away so long... how did your meeting with your specialist go? How are you doing now?

    • MTB1960

      730d

      Are their any questions you can think of ?( to ask ) I see (via zoom )my NET specialist tmrw the 14th

      • TriptychWitch

        702d

        @MTB1960 sorry I've been away so long... how did your meeting with your specialist go? How are you doing now?

        • MTB1960

          702d

          @TriptychWitch hi no problem I know we all have lives outside of the internet I’m just so new to this ( well maybe not as new as I was ) My b12 and intrinsic factor were normal but my anti parietal value was 3x normal I’m suppose to get a scan soon since I complained about stomach pain no rhyme or reason for it I’m also coming up on my 6 mth scan :( Are you doing ok?

    • TriptychWitch

      749d

      I live a mostly average, normal life 95% of the time, and I'm doing fairly well. I do have diabetes caused by my pancreas surgeries and I have to go in for scans every 6 months to one year, but my symptoms don't affect my overall wellbeing for the most part. :)

    • TriptychWitch

      749d

      Yes, I have recurring NETs caused by a genetic disorder. Mine have been mostly in my pancreas. I have had two surgeries to remove them, and at the most recent surgery they also found a small metastatic tumor on my diaphragm.

      • MTB1960

        749d

        @TriptychWitch I have a metabolic disease ( genetic ) Aldo told my gastritis was genetic Does that seem to make it more of a reason for having NET/NEC ?

    • MTB1960

      749d

      if you already have Atrophic gastric

    • TriptychWitch

      749d

      I don't remember exactly what the b12 indicates, but high gastrin would show that you're making too much gastrin, which is the chemical that regulates stomach acid. Low gastrin would indicate you don't have enough. If you're making too much gastrin, it could be a recurring tumor causing it, and you might be experiencing nausea and/or heartburn because of it. Not enough gastrin could also cause nausea.

      • MTB1960

        749d

        @TriptychWitch my gastrin level was over 1900 :( I’m not to familiar with any of this and was the acid or lack there of means Do you have NET? Where is yours located ? How are you doing ?

      • MTB1960

        749d

        @TriptychWitch Thank you for your response I was told high gastrin was typical in Type 1 GI NET

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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