i had my tilt table test yesterday and was diagnosed with neurocardiogenic syncope (vasovagal syncope). which, after 8-9 years of battling these symptoms and seeing doctors, i’m glad to finally have an answer, but it wasn’t the answer i was expecting and i have some questions i was hoping some of y’all might be able to answer. the diagnosis was vasovagal due to the presentation of hypotension during the tilt test, which from my understanding doesn’t occur in POTS (which is what i assumed i had before). but i’ve also read that POTS is daily and chronic whereas vasovagal is episodic, would someone be able to explain the difference? i guess i’m a little confused because my symptoms have been present every day since i was 13, and it’s had such a debilitating effect on my life so i’m wondering what the definition of “episodic” means in this context? if anyone has any insight into this diagnosis or what it may mean for the future, i’d love to hear it! it’s always helpful hearing from people going through or who have gone through similar things. thanks!
Would love to hear your thoughts on this.. a few days ago I had another bad episode of almost passing out I went downstairs to grab my food and back up not fast at all and as soon as I got in my room I could barely even sit and was definitely almost out, it’s happened a few times but not as bad and don’t know why at all?
does anyone never fully pass out they just get weak lightheaded and shaky?
Any recommendations for diets/dietary changes to reduce the likelihood of having a syncope episode? Symptoms include passing out, dizziness, and tiredness
Does anyone else have vasovagal syncope/neurocardiogenic syncope? I would appreciate if you commented your triggers and anything that has helped you. My triggers seem to be any anxiety and standing/sitting still. Movement+distraction helps. I have had some success with prozac but am interested in trying parasympathetic meds like acetylcholinergic meds or even vagus nerve therapy. I have episodes every day and cannot drive or go to school. If anyone wants to talk, I will respond to messages! 🌸
What symptoms do you have related with syncope?? Do you know why you faint??
I'm Payten Aliff. I have Cardiac Syncope and Acid Reflux. I also struggle with asthma and anxiety.
hello my name is Laura and I have fainting spells and the hospital said everything is fine when it's not I'm trying to get a second opinion
How can I feel better with Neurocardiogenic Syncope?
How can I keep a job with my Syncopy? I have been looking around to find a job that is accommodating. I also have chronic migraines that cause me to miss many days of school. How can I either find a job, or explain that I pass out?
Is there any specialist I should see?
I have neurocardiogenic syncope. It is usually triggered by immediate drastic temperature changes (such as hot shower to cold bathroom) or physical exertion in heat (standing in line when it is hot). My ears get this ringing sound and sound gets muffled. I get really hot, my heart rate increases, and I get extremely nauseous. My vision starts to narrow/tunnel and get fuzzy around the edges. I get extremely pale and need to sit immediately or risk passing out. This used to be daily but now just occasional. Has anyone experienced this, and if so, any suggestions/ideas for how to reduce episodes, especially when your trigger cannot be avoided?
I have a very difficult time keeping a job and being able to pay child support to my son who lives with his father. being on medical leave on and off is eventually going to get me way behind on my payments.
other than meds, what treatments should i try?
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Anxiety (Including GAD)