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Bri4937

541d

Does anyone else have vasovagal syncope/neurocardiogenic syncope? I would appreciate if you commented your triggers and anything that has helped you. My triggers seem to be any anxiety and standing/sitting still. Movement+distraction helps. I have had some success with prozac but am interested in trying parasympathetic meds like acetylcholinergic meds or even vagus nerve therapy. I have episodes every day and cannot drive or go to school. If anyone wants to talk, I will respond to messages! 🌸

Top reply
    • MammaCookie

      497d

      Museums- walking slow. Heat, standing, blood, shots, sometimes even hearing really sad stories will pull a reaction out of me. I drink a salt/sugar powder packet added to water daily (liquid iv) and it works so well!!!! I'm a new person. I need 8 hrs of sleep and a 20 min nap, and I have a list of different relaxation activities that I do about every hour.

    • MammaCookie

      497d

      Museums- walking slow. Heat, standing, blood, shots, sometimes even hearing really sad stories will pull a reaction out of me. I drink a salt/sugar powder packet added to water daily (liquid iv) and it works so well!!!! I'm a new person. I need 8 hrs of sleep and a 20 min nap, and I have a list of different relaxation activities that I do about every hour.

    • auggie_moss

      503d

      My main trigger is pain, too hot, too cold, and anxiety to cope I carry a salt packet with Mr bec my doc told me that lacking salt can help get me back faster and it has been working but I hear sweets work too but I eat too much candy so that doesn't really work for me also putting your legs up

    • ThatBKb

      536d

      being not well rested, heat, ans standing for longer than 30 minutes are some of mine

    • jellypeanut

      538d

      My triggers are sight of 🩸 and getting overheated, or being dehydrated for long periods of time. I’m still trying to find ways to cope when an episode happens. I normally end up passing out because of it.

      • Bri4937

        537d

        @jellypeanut ours sound very similar! Feel free to message me if you ever want to talk :)

    • Kaislyn

      541d

      My triggers are when my bowels are trying really hard to pass something or sometimes just when they are just normally passing things :(

      • Alikegirl

        540d

        @Kaislyn same to me, now I’m thinking I have dumping syndrome

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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