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Anyone here with hyperadrenergic pots or both pots and migraines? Neurologist gave me 100mg sumatriptan for migraines and it makes POTS so much worse.
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Migraine
Postural Orthostatic Tachycardia Syndrome (POTS)
Sumatriptan
Metoprolol
Clonidine
Chronic Headache
Dizziness
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750d
Yeah…I wouldn’t touch that stuff in a million years, I’d tell your neurologist to change meds for you. For migraines I’d just use a hot compress since most migraine medicine makes pots hell
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I feel like I should add: I’ve had fewer migraines since controlling my hyperPOTS… I take clonidine patch, ivabradine, and metoprolol for my hyperPOTS…
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I have hyperadrenergic POTS and get migraines, tho not as frequently as I did when I was younger. I don’t take anything but NSAIDs for my migraines on the rare occasion I get them now.
I have both migraines and hyperadrenergic pots but I don’t take sumatriptan. I’ve been on a daily preventative medication since before my pots diagnosis which helped me until my pots got worse and now I’m not sure it’s doing anything.
@Wanderinglumos Maybe an odd question, but what kind of doctor is most helpful in dealing with your hyperPOTS? Neurologist? Cardiologist? Other? I first got diagnosed by cardio, and my Neurologist didn't deal with it at all
I love my aimovig shot!!
I have POTS, migraines and pseudotumor cerebri so headaches and dizziness are an everyday thing. Its been about a year since I have taken sumatriptan... it made pots worse and didnt help the headaches at all. I am currently pregnant so I haven't tried it again.
@911Medic19 question, have you tried any of those preventative injections like emgality? My neurologist said I should look into it, but I don't know how that'll mess with the POTS
@911Medic19 Yeah. It's really weird, because it increases my BP, but not my heart rate. But it feels like a rush of adrenaline: a weird hot/cold rush (like you get from a severe jump scare), out of breath, loss of balance, muscle strength gone...
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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