See Alike in...

Alike App

Browser

SageKay

525d

okay. I have POTS. It's so bad that I can't drive because I pass out at the wheel. My cardiologist said that there's no current treatment I can have for POTS. Does anyone know of anything that makes it slightly better?

Top reply
    • Loblolly

      525d

      Okay, I have a lot for you. I’ve had it for more than a decade diagnosed, and I have a family history of it dating pretty far back. This is an overall list dating from 1916-present of what helps. -Compression socks -Hydration -Cut out artificial food dyes (big one) —ESPECIALLY red and blue (major cause of hearth palpitations) -Salt salt salt and more salt -Elevated feet whenever possible -Ice packs/remain as cool as possible -Glass of water before bed and ASAP next morning (no idea the science but it helps) -A consistent routine of sleep and waking up is essential. The more routine and structure you have in your life the better off you’ll be. I have no idea what your region is but COLD helps, and obviously high altitudes (example Colorado) does us NO favors.

    • Belugabear

      524d

      I’ve tried a lot of the things people have said, but I also wanted to mention there definitely are medications that help, especially if your blood pressure is also low when lying down (mine is). I’ve tried midodrine and fludrocortisone! The fludrocortisone worked better but because it is a steroid it made my cortisol levels extremely low. But they might be worth asking your doctor about! They aren’t perfect and need to be used with the other techniques mentioned, but it helps!!

    • Smash

      524d

      I get weekly iv hydration and it has helped a ton!

    • curtain

      525d

      There is medication that can help POTS. I take propranolol, which helps me so much. Hydrating is important. My cardiologist suggested Liquid IV in my water when I'm feeling particularly potsy. Also, being aware of heat sensitivity if you have it is helpful. Light, wicked clothing makes a difference!

      • SageKay

        525d

        @curtain thank you so much!!

    • catholivia

      525d

      I drink at least TriOral packet (can get on Amazon) every morning and it’s been a game changer for me. also salt stick capsules or chewable tabs! conditioning yourself to slowly increase exercise can help a lot too. and if your blood pools in your legs definitely try compression socks

    • Loblolly

      525d

      Okay, I have a lot for you. I’ve had it for more than a decade diagnosed, and I have a family history of it dating pretty far back. This is an overall list dating from 1916-present of what helps. -Compression socks -Hydration -Cut out artificial food dyes (big one) —ESPECIALLY red and blue (major cause of hearth palpitations) -Salt salt salt and more salt -Elevated feet whenever possible -Ice packs/remain as cool as possible -Glass of water before bed and ASAP next morning (no idea the science but it helps) -A consistent routine of sleep and waking up is essential. The more routine and structure you have in your life the better off you’ll be. I have no idea what your region is but COLD helps, and obviously high altitudes (example Colorado) does us NO favors.

      • Loblolly

        525d

        @Loblolly And avoid anything and everything that has MSG in it, aka be careful around Chinese food especially. MSG can and will cause severe heart palpitations and make you more likely to be dizzy/pass out.

        • SageKay

          525d

          @Loblolly thank you so much. Im going to try a lot of these!!

      • Loblolly

        525d

        @Loblolly Oh, and hydration for example Gatorade is great, but if you overdo it on the electrolytes it will make you feel worse instead of better.

    • LIVINGWITHLYSSA

      525d

      Salt tabs

      • SageKay

        525d

        @LIVINGWITHLYSSA thank you I will try it!

    • Loblolly

      525d

      Can I ask first how long you have had symptoms/been diagnosed?

      • SageKay

        525d

        @Loblolly I've had symptoms since before 2019 but I was just recently diagnosed 2 months ago.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion