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BoomerangValentine

794d

A little bit of a vent… Last night was rough, as most of my nights are. Up all night with gastroparesis symptoms and a lot of joint pain. No sleep. It’s normal for me though. The last few days have been filled with procedures, tests, and appointments that were - as you all know - so hard physically and emotionally. Also normal. I’m stuck in bed when not doing medical things. I can’t eat, and I’m in pain and exhausted 100% of the time. My whole life is dictated by symptoms. I think many of you can probably relate. But I got a text this morning from a (healthy) friend showing their slightly hypermobile joint and asking if that means they have EDS. One joint with no pain. No other symptoms or comorbidities. And for some reason (perhaps sleep deprivation), it broke me. This illness has taken my whole life. It isn’t just being bendy. It’s frustrating. I know my friend didn’t mean to upset me. I know they were just trying to relate or connect or something. But it hurt. Sorry there isn’t a question. I just needed to put these thoughts somewhere, and maybe some of you can relate. Thank you for reading. I hope you all are having low symptom days 💕

Top reply
    • qgy

      792d

      I can relate tons, constantly sick and unable to live a normal life and only sometimes it sinks in how different a life we are forced to live. But stay strong there are so many good days to come. Take each day one at a time. Hoping the best for you and your health <3

    • qgy

      792d

      I can relate tons, constantly sick and unable to live a normal life and only sometimes it sinks in how different a life we are forced to live. But stay strong there are so many good days to come. Take each day one at a time. Hoping the best for you and your health <3

    • BoomerangValentine

      793d

      Thank you so much! I really appreciate your kind comment 💕

    • Dragonrollz

      793d

      Oh man….. I’ve been having gastroparesis flares so much in the past year that with my diet it’s trial & error…. I know it’s hard to eat (I tend to throw up with the build up) I had to get my nutrients with baby food so I’d feel less crappy…. We can try to figure out what works for you?? When it comes to your friend…. I get it! I have friends that are normal & they complain about one thing & they think they have what I have & it can get frustrating & I personally don’t know why they do it but you’re just overwhelmed hence the crying but you’ll get through this! I wish the best for you & your Heath

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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