Yes I have many more symptoms but my message was long enough lol but does anyone else have trouble trying to explain EDS to people that don't have it and getting them to understand?

I’m glad you finally have answers! It’s such a bittersweet moment to finally have an answer after so long. It’s hard getting a diagnosis but it is so helpful to have answers. (Im not diagnosed. I’m seeing a geneticist this year for testing for eds but I felt this way after my POTS diagnosis). I’m so glad you have a great support system as well! Wishing you the best.

Now there is more to my story and I will post later just trying to get my kids in the bed

I had the same experience.

Yes! Always hurting but as a kid no one believed me :( trying to get a diagnosis at the moment but telling my friends / loved ones I’m always hurting and they just tell me I’m being a baby or everyone hurts… I’m like yea but does your hips pop out of place just by rolling over in bed/ laying on one side to long along with pain all over 24/7! I feel you! 🖤