Dealing with the Pain of Being Ignored by Doctors for Years

I'm scared I'm getting close to things completely giving out on me. Literally crying at work rn in pain

The thing with these docs, who know nothing about EDS, is the disregarding of what I know about my own body, and since this condition isn't well known I've had to become an "expert". I'm exhausted advocating with myself. I've only been fighting this for 10 years (diagnosised 5 years ago). The eff'd cycle of pain & fatigue is not all in my head. And neither is the dislocation (or partial) of joints. I think I could deal with the occasional dislocation if my muscle could get a break from all the work they do.

I’m trying to get diagnosed now and I absolutely relate. I have some other psychological issues that lead me to respond to anything I feel with unbridled rage, so when I cope with that it helps handle the feeling that caused it. That might be pretty specific to me though.

I feel that in my soul. Honestly, I don't know of a short cut to get passed the trauma of medical gaslighting, but steering clear of doctors (and all other people) who tell you that your pain is all in your head helps. I've also found a lot of understanding in online EDS forums.