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Newly Diagnosed with EDS: Seeking Advice

crunchyoddball

739d

any advice for someone with a new eds dx?

0

12

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Ehlers-Danlos Syndrome (EDS)

Gastroparesis

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Top reply
    • crunchyoddball

      729d

      @Bijoux_bean22 it absolutely does. I'm sorry you are struggling. I finally convinced my gp to see up with a dietician

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    • Bijoux_bean22

      732d

      @crunchyoddball I am currently existing on soup, applesauce, baby food, juice, pudding ect. It’s only made a 7% difference and I feel like all my nutrients are missing. I hate it. Gastroparesis sucks sometimes.

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      Reply
      • crunchyoddball

        729d

        @Bijoux_bean22 it absolutely does. I'm sorry you are struggling. I finally convinced my gp to see up with a dietician

        1

        Reply
    • justkittenya

      735d

      Find a PT that is very familiar with EDS and will listen to you and your body.

      1

      Reply
    • Bijoux_bean22

      738d

      I am also trying to find balance with EDS and gastroparesis among other things. It’s not looking good though. With how its progressing I would be very surprised if I went back to school in the fall without a feeding tube of some kind.

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      • crunchyoddball

        737d

        @Bijoux_bean22 so sorry to hear that. Are you on the gastroparesis diet? It's helping me tons.

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        Reply
    • Bartender

      739d

      What do you do for the gastroparises

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      Reply
      • crunchyoddball

        739d

        @Bartender I take entocourt and stick to a gastroparesis diet. It sucks, but it makes a huge difference

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        Reply
    • Bartender

      739d

      I'm still trying to figure it out myself. Hopefully someone else will have some experience?

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      Reply
      • crunchyoddball

        739d

        @Bartender it's a scary new world, for sure

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        Reply
        • Bartender

          739d

          @crunchyoddball yes and there are other illnesses that can be connected to EDS. Do you have anything else

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          Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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