Newly Diagnosed with EDS: Seeking Advice

any advice for someone with a new eds dx?

Your answer

Bijoux_bean22

2y ago

@crunchyoddball I am currently existing on soup, applesauce, baby food, juice, pudding ect. It’s only made a 7% difference and I feel like all my nutrients are missing. I hate it. Gastroparesis sucks sometimes.

crunchyoddball

2y ago

it absolutely does. I'm sorry you are struggling. I finally convinced my gp to see up with a dietician

justkittenya

2y ago

Find a PT that is very familiar with EDS and will listen to you and your body.

Bijoux_bean22

2y ago

I am also trying to find balance with EDS and gastroparesis among other things. It’s not looking good though. With how its progressing I would be very surprised if I went back to school in the fall without a feeding tube of some kind.

crunchyoddball

2y ago

so sorry to hear that. Are you on the gastroparesis diet? It's helping me tons.

Bartender

2y ago

What do you do for the gastroparises

crunchyoddball

2y ago

I take entocourt and stick to a gastroparesis diet. It sucks, but it makes a huge difference

Bartender

2y ago

I'm still trying to figure it out myself. Hopefully someone else will have some experience?

crunchyoddball

2y ago

it's a scary new world, for sure

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