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crunchyoddball

784d

any advice for someone with a new eds dx?

Top reply
    • crunchyoddball

      775d

      @Bijoux_bean22 it absolutely does. I'm sorry you are struggling. I finally convinced my gp to see up with a dietician

    • Bijoux_bean22

      777d

      @crunchyoddball I am currently existing on soup, applesauce, baby food, juice, pudding ect. It’s only made a 7% difference and I feel like all my nutrients are missing. I hate it. Gastroparesis sucks sometimes.

      • crunchyoddball

        775d

        @Bijoux_bean22 it absolutely does. I'm sorry you are struggling. I finally convinced my gp to see up with a dietician

    • justkittenya

      781d

      Find a PT that is very familiar with EDS and will listen to you and your body.

    • Bijoux_bean22

      784d

      I am also trying to find balance with EDS and gastroparesis among other things. It’s not looking good though. With how its progressing I would be very surprised if I went back to school in the fall without a feeding tube of some kind.

      • crunchyoddball

        783d

        @Bijoux_bean22 so sorry to hear that. Are you on the gastroparesis diet? It's helping me tons.

    • Bartender

      784d

      What do you do for the gastroparises

      • crunchyoddball

        784d

        @Bartender I take entocourt and stick to a gastroparesis diet. It sucks, but it makes a huge difference

    • Bartender

      784d

      I'm still trying to figure it out myself. Hopefully someone else will have some experience?

      • crunchyoddball

        784d

        @Bartender it's a scary new world, for sure

        • Bartender

          784d

          @crunchyoddball yes and there are other illnesses that can be connected to EDS. Do you have anything else

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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