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Phoenix63

608d

Seems to be a common thread for most fibromyalgia sufferers that the reaction of most friends and family was non belief. I am not believed either ... even my mom (who had a friend with fibro) said "I wasn't in enough pain, you can't have it" . This has got to be the worst part of living with fibro, here you are doing your best to be a "warrior" and the results, you get talk down about instead of praised.

Top reply
    • Sarahjean

      587d

      @HattieMae is anyone on SSI? I’ve been trying for about a year now

    • HattieMae

      599d

      I Hate it too !! Because Fibromyalgia Attacks from the. Inside & people don’t understand the Pain is Real!! I raised4 grandkids 2 graduated & moved out & I still have 2 teens here that Don’t want to get up & help Me!!🥺😢#F…Fibromyalgia & tell my grandkids, that’s alright one day your gonna have your own kids to Deal with!! Good Luck Buttercup!!😉👍

      • Sarahjean

        587d

        @HattieMae is anyone on SSI? I’ve been trying for about a year now

    • Ojos

      599d

      Any one is claim for disability with this condition ?

      • Greenie23

        597d

        @Ojos I’m in the process of trying to get on disability for fibromyalgia

    • kitajenn

      603d

      I can relate. I hear 'get over it' way too much.

    • Hockeyfan

      604d

      I was diagnosed 23 years ago. I quickly stopped telling anyone that I had it. The eye rolls and jokes weren’t worth it. It’s more understood now than it was back then but people still don’t get it. I know this isn’t uncommon for “invisible” chronic illness sadly.

    • Sarahjean

      604d

      Ugh I’m so sorry, my mom is the same way

    • Greenie23

      606d

      I’ve definitely been told I’m not in enough pain. It sucks! I’ve also gotten that they don’t think fibro is a real condition, never mind a disabling one. It feels like I constantly have to push myself to act “normal,” but I’m working on unlearning that and doing right by myself.

    • Kat1969

      608d

      This is so true. I hurt constantly and when I get stressed can barely move some days. However, my husband is sick of hearing me whine about it. I get so depressed and it has me messed up to where even my once great memory is bad. It’s causing me to not have a job or a great marriage. Also, when you try to tell people had much it hurts they don’t believe it either. All my doctor will say is take pain meds. Those pain meds are toxic. I have been law abiding my whole life but have taken to eating edibles and smoking weed for a little relief. Then my kids have something to say about that because they’ve been told not to their whole lives by me. I’m sorry I shouldn’t even be on here but just so depressed and disillusioned.

      • Bubblingbrownsugar2

        605d

        @Kat1969 OMG I'm so sorry to hear that, I feel like we have to do what's best for US, and if people don't understand ohh well, the pain is out of this world, I take lyrica and it's working for me, Thank God.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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