Phoenix63

245d

Seems to be a common thread for most fibromyalgia sufferers that the reaction of most friends and family was non belief. I am not believed either ... even my mom (who had a friend with fibro) said "I wasn't in enough pain, you can't have it" . This has got to be the worst part of living with fibro, here you are doing your best to be a "warrior" and the results, you get talk down about instead of praised.

Chronic Generalized pain

Generalized pain

Fibromyalgia (FM)

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  • Kat1969

    245d

    This is so true. I hurt constantly and when I get stressed can barely move some days. However, my husband is sick of hearing me whine about it. I get so depressed and it has me messed up to where even my once great memory is bad. It’s causing me to not have a job or a great marriage. Also, when you try to tell people had much it hurts they don’t believe it either. All my doctor will say is take pain meds. Those pain meds are toxic. I have been law abiding my whole life but have taken to eating edibles and smoking weed for a little relief. Then my kids have something to say about that because they’ve been told not to their whole lives by me. I’m sorry I shouldn’t even be on here but just so depressed and disillusioned.

    • Bubblingbrownsugar2

      242d

      OMG I'm so sorry to hear that, I feel like we have to do what's best for US, and if people don't understand ohh well, the pain is out of this world, I take lyrica and it's working for me, Thank God.

  • Teardrops

    245d

    😥. Enough pain??? I hate to hear that someone who say such thing to you. It sounds like to manage to hide your pain well. Continue to be a warrior!!! It’s hard to get help from friends and family and doctors… I hurt too much from fibromyalgia and chronic migraines. And yet no one really gets it how much I hurt.

  • Greeny

    244d

    I’ve definitely been told I’m not in enough pain. It sucks! I’ve also gotten that they don’t think fibro is a real condition, never mind a disabling one. It feels like I constantly have to push myself to act “normal,” but I’m working on unlearning that and doing right by myself.

  • Sarahjean

    242d

    Ugh I’m so sorry, my mom is the same way

  • Hockeyfan

    241d

    I was diagnosed 23 years ago. I quickly stopped telling anyone that I had it. The eye rolls and jokes weren’t worth it. It’s more understood now than it was back then but people still don’t get it. I know this isn’t uncommon for “invisible” chronic illness sadly.

  • kitajenn

    240d

    I can relate. I hear 'get over it' way too much.

  • Ojos

    237d

    Any one is claim for disability with this condition ?

    • Teardrops

      237d

      I was already on Disability before the fibromyalgia got to where it is now. I have severe anxiety and personality disorder which is why I am on disability

    • Greeny

      234d

      I’m in the process of trying to get on disability for fibromyalgia

  • HattieMae

    237d

    I Hate it too !! Because Fibromyalgia Attacks from the. Inside & people don’t understand the Pain is Real!! I raised4 grandkids 2 graduated & moved out & I still have 2 teens here that Don’t want to get up & help Me!!🥺😢#F…Fibromyalgia & tell my grandkids, that’s alright one day your gonna have your own kids to Deal with!! Good Luck Buttercup!!😉👍

    • Sarahjean

      225d

      is anyone on SSI? I’ve been trying for about a year now

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