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jamjar

524d

Ok, just wondering how the heck people manage fibromyalgia, I am already forcing myself to do everything because of depression and now I have constant physical pain on top? It’s easy for others to say you have to just keep doing stuff but i’m so tired

Top reply
    • idk_182

      315d

      I mean I only have a couple years of experience but I'd say invest in mobility aids if that's a suitable thing for u. They can rlly help if saving what's left of ur little energy and often let's you do a bit more throughout the day to get ur life back. It won't take the pain away but they will give you some respite and help u to go longer without having to stop. You can ask for an assessment and get them on the NHS or buy your own if that's okay financially for you. I'd say start with a walking stick and see if that helps but please realise that this is rather common with the condition. A large majority of people with fibro use walking sticks, walkers and even wheelchairs if they have to do a distance they know they definitely can't manage or are having a bad pain day. Remember these aids are just like glasses. There is no shame in needing them. You deserve to live a life where you can do things in as little pain as possible. You are worthy of things that help you. Xxx

    • idk_182

      315d

      I mean I only have a couple years of experience but I'd say invest in mobility aids if that's a suitable thing for u. They can rlly help if saving what's left of ur little energy and often let's you do a bit more throughout the day to get ur life back. It won't take the pain away but they will give you some respite and help u to go longer without having to stop. You can ask for an assessment and get them on the NHS or buy your own if that's okay financially for you. I'd say start with a walking stick and see if that helps but please realise that this is rather common with the condition. A large majority of people with fibro use walking sticks, walkers and even wheelchairs if they have to do a distance they know they definitely can't manage or are having a bad pain day. Remember these aids are just like glasses. There is no shame in needing them. You deserve to live a life where you can do things in as little pain as possible. You are worthy of things that help you. Xxx

    • sorenachy

      315d

      I know it's hard, but with fibro you have to learn to listen to your body. If you need to rest, rest. Don't listen to those that don't know what you are going through. They mean well, but they just don't get it. With fibro you sometimes have to be selfish and just take care of yourself first and let other stuff go. It will be there later. I hope you can find some relief and get some rest. ❤️❤️

    • Chadwick108

      317d

      I have to have to find a Happy median as being active. Am usually very active most work days since outside. But if I lay around and do nothing it makes me feel just as bad or worse than if I worked a long and hard day. I try and go to the gym at least once a week and use the hydro massage when I'm there which really helps me

    • legdaybae

      324d

      Massages (between flare ups, they shouldn't massage you during a flare up - speaking as a chronically ill LMT myself)

    • faerywyrm

      331d

      Sleep is important. Good sleep followed by long slow stretches helps me get up to the bathroom at least. Not beating myself up is hard, but it's important. I've also found that warm showers and hot baths tend to help with loosening things up. I use arnica and turmeric to help with the pain.

    • Essjay

      512d

      Stretching has helped me! Not a perfect answer but sometimes it helps! Ohh and lavender oil for sleep!

    • EncyclopediaFae

      512d

      Cannabis. Lots and lots of cannabis. But research is paramount. Look into terpenes, sativa vs indica and I recommend Leafly to for info on the different strains. Some are better for chronic pain than others. I also recommend a journal to track how you respond to strains, percentages, and terpenes so you can learn what works for the occasion

      • jamjar

        511d

        @EncyclopediaFae i’m in the uk so that’s unfortunately not an option really ;-;

        • glitterpears

          511d

          @jamjar Hey! Just wanted to say that i’m a uk medical cannabis patient and have been for around 9 months now - it’s 100% legal and you receive a prescription as proof, it’s private though so can be a bit pricey (£50 for an appointment) Im with cantourage clinic they are amazing i would defo recommend it’s life changing

    • MissDreamer

      517d

      J absolutely understand this - it really is so difficult! Hear if you want to talk x

    • Eleanor25

      519d

      I feel you. I know how hard it is. Hope you get some relief soon. X

    • Gracica2013

      519d

      Sometimes it helps to remind myself that every time I get something done, I've won another battle with my fibromyalgia and depression. Maybe it can help you too. P.S. I'm proud of you!! 😊

    • sarcasmic1der

      520d

      Same boat. Unfortunately the last meds I was on caused a reaction - so I'm still in the ever waiting game for small solutions. Lately it's a lot of guilt for me when I am in pain even though I know I need the rest - but there's work, and kids and general life... I still have to hustle. I just break down a lot more these days.

    • EmAlly

      520d

      Are you on medication for your Fibro? I credit my meds (Amitriptyline) for making my Fibro much more manageable but I do tend to get flare ups when my mood is low.

    • Gnomia

      521d

      The best advice I’ve been given is to listen to your body. Don’t push past your limits because of what is *expected* of you. Expectations are future resentments & we don’t need that. Talk to those around you and be honest with them and yourself when you need a break.

      10

      • Robyn8

        518d

        @Gnomia I totally agree with this. When I first became unwell, after the initial not being able to do anything part, I pushed myself to try and do anything I used to be able to do because I thought it was expected of me but it just made me worse. The most important things I’ve learnt on my journey is how to say no and be honest about how I’m feeling and pacing. The spoon theory helped me understand how to pace… if you’ve herd of it! 🙂

        • Robyn8

          518d

          @Robyn8 Also take everything you’ve managed to do in a day as a win and an achievement no matter how small it is. At the end of the day if someone asked me what I had done in that day I used to say nothing as I felt like to them the small jobs I had done would seem so insignificant they weren’t worth mentioning. Now I say with pride things like “I had a shower today” or “I cooked something” or even be proud for just getting up!

      • Scoutie

        521d

        @Gnomia best advice !!

    • lisalocket

      521d

      My pain management team got me a lidocaine infusion which is slow released over 2 hours and this helps me for roughly 3 months. Might be worthwhile looking into

    • Eukair

      522d

      I love to make blankets ( crochet) just to keep my mind active

    • notmia

      524d

      Cbd (and thc😉) has helped me a lot. Its great for when i need pain relief but can't take meds that make me sleep

      • jamjar

        523d

        @notmia I have a CBD cream which helps sometimes, I mainly use it before going to bed to stop the pain waking me up! If I had a hookup thc would probably be a god send 😂

        • QueenChronic

          512d

          @jamjar lots of options becoming available now even in states where cannabis is illegal! There are many hemp-derived CBD and THC products that may be available in your state. Personally my favorite is Extract Labs. They have lab testing on each batch. The 2000mg CBD tincture helps me with pain throughout the day and they have 10mg THC/10mg CBD gummies that help at the end of the day when I get too stiff to sleep

        • notmia

          519d

          @jamjar some amounts of thc are legal! You should definitely research your states laws on it. Even small amounts could be helpful!

    • Rory_

      524d

      People who do not experience the illness personally will always be blindly ignorant to it. There are Facebook groups out there for everything- so I can imagine there will be support groups amongst them for Fibromyalgia where you may be able to find daily posts offering tips/tricks and support. Just stay strong, I know it’s hard but you’ve got this.

      • jamjar

        523d

        @Rory_ thank you ☺️

    • Olawola

      524d

      Journaling has helped me, and also like someone else said stretching helped me when I was more consistent with it. Listening to music to get me through certain things as well, and letting it be known to myself that rest is productive.

      • jamjar

        523d

        @Olawola I used to keep a very detailed journal as an art project! I’ve got myself a diary to start noting important things each day in because brain fog is the worst

        • Olawola

          522d

          @jamjar yessss the brain fog is horrible

    • frustratedfibro

      524d

      One of my best advices is to stretch when you wake up and before you sleep. It'll help wake your body up, get you out of bed and get you moving. The stretching at night will calm your body down. I also take baths almost every day and that helps a lot! Sending gentle hugs! 🤗

      10

      • kai_ai

        518d

        @frustratedfibro definitely suggest the baths if you can. It relaxes my muscles and calms my body before getting into bed and helps me fall asleep quicker

      • CarisNotCharis

        524d

        @frustratedfibro yep, I take hot baths and use essential oils. Help with the Fibro, but also is a calm space for me to unwind in the evenings and read, so also good for my mental health

        • jamjar

          523d

          @CarisNotCharis had a bath yesterday! although the benefits wore off after about an hour 🙄

      • jamjar

        524d

        @frustratedfibro Thanks i’ll try that! Might help sort my sleep out too 😅 Same to you though, lovely 💕

    • 1lovemyheatingp8d

      524d

      following for advice

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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