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792d
With vWd what do you struggle with?
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Von Willebrand's disease
Generalized pain
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739d
I get easily bruised, occasional nosebleeds, and stomach internal bleeding (when i was younger)
771d
how bad is the pain from the procedure?
It totally changed my quality of life no joke! I am a nurse and I would get them mid shift for hours. I just couldn’t manage it anymore. I scheduled with ent and they took a look and cauterized ! I haven’t had a major one since (5+ years) I still get some bleeding with blowing too hard/ dryness but not nearly the amount
Yes!! Mine would last for hours. I did it with an ENT !!
772d
oh my gosh that’s a thing you can just do? i’ll have to look into it!
I use to have nosebleeds with that kind of frequency and ingot my nose cauterized and it’s helped tremendously
constant nosebleeds. i get them multiple times a day, lasting for up to an hour sometimes.
790d
That's good. What helped your cycle get under control?
I have low factor 8 ! I honestly don’t have too many issues now that I have cycles under control
1
791d
I don't know my subtype but I'm 2 also. Platelet disfunction
I have type 2n
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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