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607d
This post is for the girls- I have stage 4 Endo and I’ve never had a relationship because of it. I wanna find someone to be intimate with whenever the time is right, but a lot of women with Endo experience painful sex. Is there any of you who have Endo and are able to be intimidate with a partner WITHOUT having pain during it or after?
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Endometriosis
Generalized pain
Chronic Generalized pain
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583d
there is 1 time in my life where sex wasn't painful and i have NO IDEA how, i think it was the position, but besides that i'm pretty sure i'm asexual because being my endometriosis has made it feel impossible to have sex to the point where i don't even want it anymore because it always gets ruined. something i can tell you tho is LOTS of lube, be ontop, go SLOW, and do not let said guy go too deep.
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584d
My Endo is stage 2, so it depends on the day and if im already in a flare up whether I have pain during/after or not. Honestly u just have to find a partner who is understanding of the fact that it happens. My boyfriend is very understanding and provides aftercare, as most of my pain is after sex. When it occurs during we just have to take it slow, as most of my Endo symptoms don’t ruin intimacy.
A bumper helped us for some of the "deeper" positions. We found one at our local place that was ~1" thick and that seemed to help a bit. Past that, some explicitly foreplay things were great too, if you're comfortable not going "all the way," so to speak. I feel like i struck gold with my partner since I got my diagnosis while I was with him, maybe 1 year in at most lol. There are good ones out there, i promise. ✨
588d
For me certain positions hurt worse than others, missionary (with a lot of lube or foreplay) is one of the only ones that I can do without extreme pain. I still bleed the day after and have some discomfort but if I want to be intimate with penetration it's something I just have to deal with
U have to find someone who will listen and understand I pray u do one day
I don’t what stage I’m in but me and my husband do more oral this might be tmi but when we did try I bled every time and it hurt but they did a d and c on me too
590d
Try the OhNut! It helps control how deep your partner can go inside to keep it from hurting. Pelvic wand can help you release tension in your pelvis.
594d
Wait there are stages? 😥
@Yve yep! 1-4. Has nothing to do with pain, you can have any stage with a lot of pain. The stages are just to describe how many organs (and systems) it’s spread to and how deep the tissue is
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@Yve yes, it has stages that indicate how far it's spread, just like any other potentially progressive condition
I find that if I get oral first it relaxes my pelvis and he can slowly stretch me out with his fingers. And if necessary I'll wrap my hand around him so he can only get halfway in.
Early stage 3 and yes I can have sex without pain. Excision + PT + good lube
Try Ohnut company. They sell these things that your partner can place on his ‘member’ to ease pain keep deep penetration at bay. This is coming from someone (me) who has had 16 endo surgeries. Good luck to you and I hope you find someone to be happy with 🙏
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@KatoLizbet Big agree!! It’s so helpful.
@KatoLizbet I agree Ohnut is great!!
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I'm in the same boat, stage IV endo (including rectovaginal endo) and vaginismus/dyspareunia. My partner and I just don't do anything penetrative very often, and he's really good about aftercare when we do. There are lots of ways to be intimate without penetration, it's definitely worth exploring with your partner(s)
I wish that for us
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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