New to the group, looking for support with temporal lobe epilepsy

MarlissMae

772d

Hi I’m new here. I was diagnosed with temporal lobe epilepsy almost 7 years ago after 2 grand mal seizures. I’ve been on Keppra since then and have been completely under control until about a month ago. I started having auras early in the morning. Anyone else experienced this? Feeling alone.

Ibuprofen

Alprazolam

Localization-related epilepsy and epileptic syndromes with complex partial seizures

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reneekb

621d

They always put you on keppra first, I have a cavernous malformation in my right temporal lobe. Giving me both grand mal and absent seizures. If there's any questions you have I'm more than willing to answer

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reneekb

621d

They always put you on keppra first, I have a cavernous malformation in my right temporal lobe. Giving me both grand mal and absent seizures. If there's any questions you have I'm more than willing to answer

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Begonia_Marie

761d

Do you have a rescue med like Ativan or Valium? You should talk to your neuro abt having something on hand if you get an aura for preventing a seizure. Best of luck!!

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MarlissMae

761d

Thank you for the advice. Seems like even though I’ve had this almost 7 years I’m still learning. I find that after my auras my alprazolam helps a lot with the anxiety from it!

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MarlissMae

761d

I’m hoping that’s what happened. They increased my dosage and it’s still happening. They’re so scary! Thank you for the ibuprofen advice; I didn’t know this! I hope you are doing well :)

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- LCM
  
  761d
  
  @MarlissMae Fingers crossed! I always google whether or not any new over the counter medicine, supplement, prescription, or foods lower seizure threshold or interfere with my meds. You really have to be your own doctor/advocate sometimes which seriously sucks. But it’s why I like this app! Leveraging each other’s collective knowledge and experience can only help us.
  
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LCM

761d

I’m so sorry! Auras have always been scary for me. I don’t take keppra myself but I wonder if you can develop a level of tolerance to it? Also, I’ve found that taking more than one dose of ibuprofen or Tylenol consistently gives me auras, and so does any Benadryl. They all lower seizure thresholds but doctors literally never seem to know this smh

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- Momx3
  
  711d
  
  @LCM I wasn’t aware of the ibuprofen thing but I stopped taking it quite a few years ago because I knew it made my heart race before my official diagnosis.
  
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New to the group, looking for support with temporal lobe epilepsy

MarlissMae

Top reply

reneekb

reneekb

Begonia_Marie

MarlissMae

MarlissMae

LCM

LCM

Momx3

Alike health

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