Looking for Support with Seizure Surgery

Levetiracetam/Keppra has helped me a lot too. Glad to see it’s at least helping, and I’ll pray that the surgery helps! Just FYI, I’d suggest that you try seeing an epileptologist if you aren’t already. They’re generally better than a regular neurologist since they specialize in seizures.

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Hi kaitikins! They originally suggested removing a part of my temporal lobe, but they did some testing and it looks like the genetic basis of my seizure would just allow a new seizure network to form elsewhere. I know the stimulator will be much more invasive tho, and from what I’m seeing on here it’s not too common for people to proceed with getting one. I wanna get the inside scoop! ESP if someone experiences aphasia - my worse part to my seizures. Ive had such a hard time getting thru school with my aphasia and seizures in general. And just taking care of myself! It’s scary thinking I’ll have to do it largely alone, and if I can get them under control with this device it seems my life could be much easier. I’ve tried onfi, lamictal, and topamax, along with 5 other medications and have had no luck, or pretty yucky allergic reactions with them. (Except keppra!!!) I’m sorry your experience with surgery hasn’t been helpful. I hope you find something that works! I appreciating you responding :-)

Hey. I had brain surgery 4 years ago, and honestly, it didn't help. It wasn't a stimulator though. They removed parts of my brain that were supposedly causing the most trouble. All it did was ruin my left peripheral vision. He asked, lately, if I was interested in a stimulator. I don't want to go through another surgery again though.