Living with Absence Seizures: My Experience and Advice

Emmanuel_Obed

506d

I started having absence seizures multiple times out of the day ever since I can remember… as I began puberty it seems like, they started to lessened. Then in 7th grade out of no where I had a full on seizure. After having the seizure I began going to see a neurologist regularly. They put me on oxtellar when I was 13 and as an 18 year old I’m still on it. I’ve had about 5-6 full on seizures in my life and recently just had one last Monday at school (lovely right?). But I can say with certainty that I have never had that absence/aura feeling nor have I ever had any type of seizure while on the Jane... I recommend trying marijuana wether it’s THC or CBD concentrated. Safely and responsibly of course.

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Psychogenic non epileptic seizure

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    • Emmanuel_Obed

      502d

      @Phrrya thanks for that I’ll mention that my next appointment. Cause it used to work really well when I was first put on it. Didn’t have a single absence. Now I get them every other two to three days and now my seizures are slowly becoming more prevalent

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    • Lethean

      503d

      Serious question. How can you tell when you have absence seizure or are day dreaming? I’ve only ever known if someone sees me. Time is always slippery for me so if I feel I’ve lost time I just think I was tired/relaxed/thinking. A seizure never occurs to me.

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      • Emmanuel_Obed

        503d

        @Lethean it’s an aura feeling… it’s really hard to describe. It’s almost like feeling airy in the head and confused. Sorry I couldn’t better explain.

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        • Lethean

          503d

          @Emmanuel_Obed please don’t apologize. I appreciate any information or point of view. Thank you.

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    • Amiela

      503d

      My seizures got really bad in March and now I can't work and have filed for disability I'm averaging one seizure a day

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      • Emmanuel_Obed

        503d

        @Amiela I’m sorry to here. I hope things get better.

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    • Phrrya

      502d

      I'd recommend trying to tell you neurologist what's been going on and that the medicine isn't slowing the progress of the seizures or helping stop them at all. They need to be able to figure out the right dosage and/or other medication combinations to help you so that they can at least slow down. My body tends to have the problem where it will get used to the medicine dosage or it won't work and I have to see the neurologist to get and EEG done so that they can see what's happening.

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      • Emmanuel_Obed

        502d

        @Phrrya thanks for that I’ll mention that my next appointment. Cause it used to work really well when I was first put on it. Didn’t have a single absence. Now I get them every other two to three days and now my seizures are slowly becoming more prevalent

        1

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        • Phrrya

          502d

          @Emmanuel_Obed yea it really sucks lol but I completely understand and I'm glad I was able to help you 😊

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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