I am a well-controlled T1 diabetic. I was diagnosed just last weekend with gastroparesis, and I'm reeling. I spent Saturday night until Monday (6/11-6/13) afternoon in the hospital. I was told this diagnosis around lunchtime, and discharged about 30 minutes later. I was given some papers with conflicting information, and told not to drink with meals. I was freaked out that first day, partly the doctor made me feel extremely hopeless. I'm doing a bit better now (6/17), but having trouble sleeping, and I believe the Reglan I was prescribed is causing swelling in my lower legs, and possibly some other things. I'm frustrated, scared, and confused. Although the severe nausea and inability to keep anything down that sent me to the ER has eased drastically, sometimes entirely, I feel worse now than before the hospital stay, both mentally and physically.
Nausea and Vomiting
Abdominal distension (bloating)
Low Back Pain
I am so sorry you’re going through this. I was diagnosed back home 2020 And it just takes a lot of adjusting and getting used to and knowing what your body can and can’t handle. It’s been a two-year roller coaster ride for me. In the middle of a flareup right now. I am hoping you get some relief soon
Thank you. I'm sorry you're going through it too.
I know it will vary by person, but can you tell me, what is like when you're not in a flare up? I've been getting sick for the last 2-3 months, where the nausea and vomiting only lasted a day or two, then a day of not being hungry and needing a ton of rest. In the 1-3 weeks between, I was totally fine. I went to the ER finally after 3 days of not eating, drinking, or really even moving. I've been able to eat since, but BMs are super soft, if not totally watery, and I feel like I can feel my stomach...sort of quivering at times. It's so weird. I'm wondering if the previous months were a sort of honeymoon phase, and life is just always this now, with flare ups feeling like death.
so sorry it took me so long to respond. The day is when I don’t have flareups I still wake up nauseous in the morning. But I can normally manage through my day after that and feel somewhat normal. Then all the sudden it will hit me. Stomach pains, bloating, chest pains, An acid reflux are my main symptoms. During flareups though the acid reflux is even worse and I have severe pain in my right side and back. I left for the days when I feel somewhat normal. Remembering the days I can actually eat more than potatoes and rice.
I hate to say but welcome to the club 😥 no worries it’s overwhelming at first but you will figure out more as you go along. It’s not a death sentence you’ll have to stay away from some of the yummy things you like but for me… staying positive and thanking God that it’s not worse counting the blessings I do have and helping my body to heal (because I believe it can heal) make me want to wake up and fight another day 💕
I've had such a difficult time with God in the last decade or so. People have such pretty things to say, but they are always intended more for things that happen as a result of other people's choices. I've never had a difficult time with God for those things, because I believe in Free Will. But nobody's choice caused this. No one's choice caused our 8 years of infertility. And, when others choices HAVE caused negativity in my life, to then get piled on even more by things like this...it's hard not to feel hated. Or hate, sometimes. And, of course, that hurts too. I don't like feeling this way. I think I will work through it, but it's hard right now.
Thank you so much for the encouraging words. People have been my main blessing through my worst times. Maybe I can try focusing on that, and recognizing it as such.
I've been wondering if I should try a diet similar to what a friend did for her kiddo. Poor kid was all of 3 when she was dx'd with arthritis. Her mom almost totally changed the family's diet. It was extreme, and she had to keep it up a long time. But kiddo is doing great now, almost in remission (just not technically, according to labs), and they've slowly added things back in. I'm just so unsure. I already dislike most veggies, and now I also have to worry about the fiber....and the butter I tend to enjoy with the ones I do like! 😬
I understand what you are saying, the free will and all but I believe you will work it out. I think people blame God for a lot of things that aren’t really his fault, all he really wants is for us to love him and love each other, and the eating part, we absolutely have to change what we eat, it’s a MUST! I believe finding the foods that work for your body, (not causing flares), staying away from STRESS, and trying to enjoy life in spite of what we’re going through puts us in the path to healing, it is possible 💕
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