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Lilmissshorty

Updated 2y ago

Dealing with Gastroparesis: My Frustrating Journey

Good evening everyone. I was recently diagnosed with gastroparesis (on top of many other issues). This has got to be the most frustrating and irritating disease ever. I can't get a handle on it.

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jencecil

2y

💕
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Laceshea

2y

I have it also I take movantik it helps with mine some. My Dr. Told me to eat small meals 4 to 5 times a day and if it gets real bad try the BRAT diet.
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Lilmissshorty

2y

I am on promethazine for the nausea, but it makes me so sleepy and it interacts with my spasm meds. I'll talk to my GI about that. I try and eat, they want me eating 6 small meals a day, but some days I just don't have an appetite because I'm so nauseous. The BRAT diet does work in a bad flare-up for me, that and liquids.
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Ginger5444

5h

they say to eat small meals several times a day. I'm a call center rep. I'm on the phone. I get lunch and 2 mini breaks. That won't work. I'm now semi retired so I only work 3 days a week. So it's not as hard. But I do drink a lot of low calorie smoothies. I have to be careful with my sugar. I also eat sugar free canned fruit and cottage cheese. So I can get some fruit and protein. Bananas, apple sauce. I have to watch my sugar, salt, fiber Carbs. It takes me 2 hours to shop each week.
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Tattie6377

2y

I was diagnosed with Sever Gastroparisis in 2020. After being violently ill for 18 months. I lost 130 lbs in that time. I was so sick for almost a year and a half after my diagnosis & then in October of 2021 i had to have all my teeth removed. November was the last month i vomited. I have to have soft food that i can chew so its easier for my stomach to process. I have put about 50 lbs on since November. Oh & stay away from hot dogs. I have been violently ill for weeks after eating hot dogs till i could finally throw them up 3 times. They would be moldy. My stomach wouldnt process them. My suggestion start eating like a toddler. Really soft foods are easier to digest.
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Lilmissshorty

2y

thank you for your suggestion!! I will start eating more like a toddler.
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BumbleBees

2y

Feel free to message me! I have moderate idiopathic GP and I’ve learned a bunch of tips and tricks while waiting for treatment! I’m still waiting for treatment actually haha. It’s hard, and there’s only so much you can do alone. But the most important thing is that there are ways to manage symptoms , even if just a little bit
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Lilmissshorty

2y

I sent you a message!!
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SaltyZebra

2y

Hi, I was diagnosed with gastroparesis in 2012. A really good resource for me was the book Living Well with Gastroparesis. The author goes over safe foods and how to add things safely back into your diet after not really being able to eat. I have found over the years that having 5-6 small meals a day every 3 hours is the most helpful and trying not to get too hungry. The hunger nausea is hard to get control of on top of the overall nausea. Taking small walks after eating or even using a heating pad has also been helpful with digestion. Hope this helps!
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Lilmissshorty

2y

thank you!! I will look into that book!! I try eating 6 small meals a day, but really only eat 3 if I'm lucky. I noticed that the nausea that comes with the hunger is harder to control. I will have to give the heating pad a try too!!
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tenacious

2y

I also have it. I have been pit on an allergy diet because I have to drink most of my calories anyway and I take metoclopramide and Linzess.
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Lilmissshorty

2y

I really wasn't put on a specific diet, I was just told what foods to avoid. Problem is that the foods that are on the allowed list also make me sick sometimes. I can't take any meds like that due to neurogenic colon which sucks. I can talk to my GI about the metoclopramide though.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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