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Lilmissshorty

728d

Good evening everyone. I was recently diagnosed with gastroparesis (on top of many other issues). This has got to be the most frustrating and irritating disease ever. I can't get a handle on it.

Top reply
    • SaltyZebra

      726d

      Hi, I was diagnosed with gastroparesis in 2012. A really good resource for me was the book Living Well with Gastroparesis. The author goes over safe foods and how to add things safely back into your diet after not really being able to eat. I have found over the years that having 5-6 small meals a day every 3 hours is the most helpful and trying not to get too hungry. The hunger nausea is hard to get control of on top of the overall nausea. Taking small walks after eating or even using a heating pad has also been helpful with digestion. Hope this helps!

    • tenacious

      726d

      I also have it. I have been pit on an allergy diet because I have to drink most of my calories anyway and I take metoclopramide and Linzess.

      • Lilmissshorty

        726d

        @tenacious I really wasn't put on a specific diet, I was just told what foods to avoid. Problem is that the foods that are on the allowed list also make me sick sometimes. I can't take any meds like that due to neurogenic colon which sucks. I can talk to my GI about the metoclopramide though.

        • tenacious

          726d

          @Lilmissshorty you are welcome

    • SaltyZebra

      726d

      Hi, I was diagnosed with gastroparesis in 2012. A really good resource for me was the book Living Well with Gastroparesis. The author goes over safe foods and how to add things safely back into your diet after not really being able to eat. I have found over the years that having 5-6 small meals a day every 3 hours is the most helpful and trying not to get too hungry. The hunger nausea is hard to get control of on top of the overall nausea. Taking small walks after eating or even using a heating pad has also been helpful with digestion. Hope this helps!

      • Lilmissshorty

        726d

        @SaltyZebra thank you!! I will look into that book!! I try eating 6 small meals a day, but really only eat 3 if I'm lucky. I noticed that the nausea that comes with the hunger is harder to control. I will have to give the heating pad a try too!!

        • SaltyZebra

          724d

          @Lilmissshorty you’re welcome! I forgot to mention the supplement drinks from Kates farm. They are allergy safe and very easy on the stomach compared to ensure and other drinks.

    • BumbleBees

      726d

      Feel free to message me! I have moderate idiopathic GP and I’ve learned a bunch of tips and tricks while waiting for treatment! I’m still waiting for treatment actually haha. It’s hard, and there’s only so much you can do alone. But the most important thing is that there are ways to manage symptoms , even if just a little bit

      • Lilmissshorty

        726d

        @BumbleBees I sent you a message!!

    • Tattie6377

      727d

      I was diagnosed with Sever Gastroparisis in 2020. After being violently ill for 18 months. I lost 130 lbs in that time. I was so sick for almost a year and a half after my diagnosis & then in October of 2021 i had to have all my teeth removed. November was the last month i vomited. I have to have soft food that i can chew so its easier for my stomach to process. I have put about 50 lbs on since November. Oh & stay away from hot dogs. I have been violently ill for weeks after eating hot dogs till i could finally throw them up 3 times. They would be moldy. My stomach wouldnt process them. My suggestion start eating like a toddler. Really soft foods are easier to digest.

      • Lilmissshorty

        726d

        @Tattie6377 thank you for your suggestion!! I will start eating more like a toddler.

    • Laceshea

      728d

      I have it also I take movantik it helps with mine some. My Dr. Told me to eat small meals 4 to 5 times a day and if it gets real bad try the BRAT diet.

      • Lilmissshorty

        726d

        @Laceshea I am on promethazine for the nausea, but it makes me so sleepy and it interacts with my spasm meds. I'll talk to my GI about that. I try and eat, they want me eating 6 small meals a day, but some days I just don't have an appetite because I'm so nauseous. The BRAT diet does work in a bad flare-up for me, that and liquids.

    • jencecil

      728d

      💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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