Stories
Privacy
Download
See Alike in...
Alike App
Browser
730d
I just wanted to share what I’ve gone through the past few weeks — I made a previous post that I deleted (because I am now making this one.) my medical history is extensive. this post is specifically about GERD, IBS, ETC — and even T1D. two weeks ago on sunday, after not eating for four days, the nausea hit me like a freight train. I was vomiting up bile and acid and my stomach was having spasms. I can’t even describe to you how painful and uncomfortable this is — anyways, three ER visits later, I was admitted to the hospital, where they did x rays, a cleanse through an NG tube (I couldn’t/can’t keep anything down, even water) which was ten hours of vomiting and crying. traumatic event. they then sent me home. I went on vacation to maine afterwards, I seemed okay. I did the regimen that the hospital suggested and I thought that since I could eat, I was okay. boy, was I wrong. about a day after we got home, I woke up to the same problem. it was immediate and I was becoming depressed, I’m still fighting that now as I heal. more ER visits, I got admitted again. they found good IV medications for me and I was able to keep some pasta down today. the teams and all the doctors here are going to figure out what’s causing this — my chronic constipation, is it gastroparesis? and ETC. so, I wait. thank you all for reading. this battle has been hard but I’m trying my best. I hope my stories can help people see they aren’t alone in situations like this, where it takes so much effort to be seen, and heard. you’ll be okay, we both will ❤️
16
41
Share
Abdominal Distention
Chronic Constipation
Chronic Nausea and Vomiting
Nausea and Vomiting
Chronic Abdominal Distention
Gastric & Duodenal Ulcer-Peptic Ulcer
Nortriptyline
Chronic Diarrhea
Low Mood
advertisement
398d
Ptl
0
610d
update: it was gastroparesis, possibly from my EDS or diabetes! I am finally being treated.
1
@teiovex p
676d
Thanjs
I’ve been battling what seems to be a similar fight as you I just recently found out my gallbladder is at a low percentage and isn’t functioning properly, I’m here if you want to chat some more!
🙏🙏🙏🙏 for you. My son has CVS which is chronic vomiting syndrome. He’s on nortriptyline now which has helped immensely. Praying for you.
@Beckibb wishing the best for you as well ❤️
🙌🙏👍❤️💕🤗
I can go 3-4 days without a bowel movement been dealing with this since 88 89 doctors can't figure out why
726d
They do have GI motility doctors have you looked into seeing one of those
3
@elo2002 I’m finally being referred to one yes!
727d
UPDATE; they did an endocolonoscopy and found nothing. they say it’s my IBS but I feel like there’s something more. we’ll be going to a specialist soon for it. hopefully something, ANYTHING, can stop this. I know everything and everybody here will be okay ❤️
2
728d
When any of us advocates for ourselves it is cause to 🎉 celebrate because often there is no one to advocate for us.
729d
First of all don’t let anyone tell you it’s anxiety, because it’s not. Also don’t be afraid of getting a second opinion
🙌
I am so tired of being depressed.. I have to plan my days around my IBS. Sometimes diarrhea sometimes constipation. actually sometimes I think the constipation is better until the pain comes
I am in a similar boat. I think I have gastroparesis, my mom thinks it’s my mast cell stuff and the GI who gaslit me and doesn’t believe that I have EDS ect. thinks it’s just another ulcer. He wanted me to take more pepcid than I was. I did it for two days and felt so awful I haven’t taken any since. I wish you the best. Feel free to dm if you want to commiserate.
❤️
❤️❤️i have had similar situations and lots of er visits too! youre not alone. i finally have a gi specialist and im now only throwing up once a week. i was doing it every night and diarrea as well. im here if you need to chat
@jellyforspongebob proud of you! keep up with that progress my friend 😌
Do you have POTS or MCAS
@Bartender might* and they were right, it was gastroparesis
@Bartender I do have POTS, they believe it mighy be gastroparesis from T1D or EDS right now. my IST (under the POTS umbrella) is doing well right now. we will see
🙏
I'm going through this as well. I just had a stomach scope and they could not do the colonoscopy I wasn't cleaned out. They did a biopsy on inflammation waiting for the results. I called and told her the pain in upper right abdomen is getting worse along with nausea and all other symptoms she gave me pepcid to take 2 times a day. I have Already been prescribed and taking this med for almost a year now to cont. To take Zofran it almost feels like a constant Charlie horse under my rib. Do you or anyone else have pain there.
@CarolJo Zofran causes constipation, i was prescribed it for nausea, it didn’t work for the nausea and it made me constipated for a week :(
@CarolJo actually yeah, I do have chronic under the rib pain. That's where liver and gallbladder is. Apparently my gallbladder is my internal hackey sack. Omg it can hurt same days.
@Nerdzilla 🙏 that sounds miserable
@CarolJo how long has it been happening your pain region sounds similar to chronic gastritis pain
@Anxiousbutterfly27 off n on year consists months
@CarolJo I hate that. I hope somebody else does better to help you or that you get your results back soon and know what’s wrong ❤️
keep ur head up and strong! i will pray to the lord to watch over u!
@crimsonwolf thank you!
So sorry you’re going through this! It’s hard when you get discharged and you’re left to fend for yourself!!
I've had mysterious GI symptoms and my own hospital trips over the last year and no answers yet. I hope you're able to get some answers
@inflamedfuturern you too ❤️
I gone thru this. Wanted to die.
@JennyPenny I definitely feel it. so happed there’s an “-ed” at the end though ❤️
@teiovex I still want to die :x But less immediately
🎉 your selfadvocacy.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions