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teiovex

681d

I just wanted to share what I’ve gone through the past few weeks — I made a previous post that I deleted (because I am now making this one.) my medical history is extensive. this post is specifically about GERD, IBS, ETC — and even T1D. two weeks ago on sunday, after not eating for four days, the nausea hit me like a freight train. I was vomiting up bile and acid and my stomach was having spasms. I can’t even describe to you how painful and uncomfortable this is — anyways, three ER visits later, I was admitted to the hospital, where they did x rays, a cleanse through an NG tube (I couldn’t/can’t keep anything down, even water) which was ten hours of vomiting and crying. traumatic event. they then sent me home. I went on vacation to maine afterwards, I seemed okay. I did the regimen that the hospital suggested and I thought that since I could eat, I was okay. boy, was I wrong. about a day after we got home, I woke up to the same problem. it was immediate and I was becoming depressed, I’m still fighting that now as I heal. more ER visits, I got admitted again. they found good IV medications for me and I was able to keep some pasta down today. the teams and all the doctors here are going to figure out what’s causing this — my chronic constipation, is it gastroparesis? and ETC. so, I wait. thank you all for reading. this battle has been hard but I’m trying my best. I hope my stories can help people see they aren’t alone in situations like this, where it takes so much effort to be seen, and heard. you’ll be okay, we both will ❤️

Top reply
    • Beckibb

      350d

      Ptl

    • Beckibb

      350d

      Ptl

    • teiovex

      561d

      update: it was gastroparesis, possibly from my EDS or diabetes! I am finally being treated.

    • brk32blondie

      627d

      Thanjs

    • Mac2

      628d

      I’ve been battling what seems to be a similar fight as you I just recently found out my gallbladder is at a low percentage and isn’t functioning properly, I’m here if you want to chat some more!

    • Beckibb

      628d

      🙏🙏🙏🙏 for you. My son has CVS which is chronic vomiting syndrome. He’s on nortriptyline now which has helped immensely. Praying for you.

      • teiovex

        561d

        @Beckibb wishing the best for you as well ❤️

    • brk32blondie

      628d

      🙌🙏👍❤️💕🤗

    • brk32blondie

      628d

      I can go 3-4 days without a bowel movement been dealing with this since 88 89 doctors can't figure out why

    • elo2002

      677d

      They do have GI motility doctors have you looked into seeing one of those

      • teiovex

        561d

        @elo2002 I’m finally being referred to one yes!

    • teiovex

      679d

      UPDATE; they did an endocolonoscopy and found nothing. they say it’s my IBS but I feel like there’s something more. we’ll be going to a specialist soon for it. hopefully something, ANYTHING, can stop this. I know everything and everybody here will be okay ❤️

    • MooieModer

      680d

      When any of us advocates for ourselves it is cause to 🎉 celebrate because often there is no one to advocate for us.

    • elo2002

      680d

      First of all don’t let anyone tell you it’s anxiety, because it’s not. Also don’t be afraid of getting a second opinion

    • Campbellmay98

      680d

      🙌

    • rewind

      680d

      I am so tired of being depressed.. I have to plan my days around my IBS. Sometimes diarrhea sometimes constipation. actually sometimes I think the constipation is better until the pain comes

    • Bijoux_bean22

      680d

      I am in a similar boat. I think I have gastroparesis, my mom thinks it’s my mast cell stuff and the GI who gaslit me and doesn’t believe that I have EDS ect. thinks it’s just another ulcer. He wanted me to take more pepcid than I was. I did it for two days and felt so awful I haven’t taken any since. I wish you the best. Feel free to dm if you want to commiserate.

    • KierstenH

      680d

      ❤️

    • jellyforspongebob

      681d

      ❤️❤️i have had similar situations and lots of er visits too! youre not alone. i finally have a gi specialist and im now only throwing up once a week. i was doing it every night and diarrea as well. im here if you need to chat

      • teiovex

        681d

        @jellyforspongebob proud of you! keep up with that progress my friend 😌

    • Bartender

      681d

      Do you have POTS or MCAS

      • teiovex

        561d

        @Bartender might* and they were right, it was gastroparesis

      • teiovex

        681d

        @Bartender I do have POTS, they believe it mighy be gastroparesis from T1D or EDS right now. my IST (under the POTS umbrella) is doing well right now. we will see

    • CarolJo

      681d

      🙏

    • CarolJo

      681d

      I'm going through this as well. I just had a stomach scope and they could not do the colonoscopy I wasn't cleaned out. They did a biopsy on inflammation waiting for the results. I called and told her the pain in upper right abdomen is getting worse along with nausea and all other symptoms she gave me pepcid to take 2 times a day. I have Already been prescribed and taking this med for almost a year now to cont. To take Zofran it almost feels like a constant Charlie horse under my rib. Do you or anyone else have pain there.

      • Mixtape

        680d

        @CarolJo Zofran causes constipation, i was prescribed it for nausea, it didn’t work for the nausea and it made me constipated for a week :(

      • Nerdzilla

        680d

        @CarolJo actually yeah, I do have chronic under the rib pain. That's where liver and gallbladder is. Apparently my gallbladder is my internal hackey sack. Omg it can hurt same days.

        • CarolJo

          680d

          @Nerdzilla 🙏 that sounds miserable

      • Anxiousbutterfly27

        680d

        @CarolJo how long has it been happening your pain region sounds similar to chronic gastritis pain

        • CarolJo

          680d

          @Anxiousbutterfly27 off n on year consists months

      • teiovex

        681d

        @CarolJo I hate that. I hope somebody else does better to help you or that you get your results back soon and know what’s wrong ❤️

    • crimsonwolf

      681d

      keep ur head up and strong! i will pray to the lord to watch over u!

      • teiovex

        681d

        @crimsonwolf thank you!

    • Elise_Laura

      681d

      So sorry you’re going through this! It’s hard when you get discharged and you’re left to fend for yourself!!

    • inflamedfuturern

      681d

      I've had mysterious GI symptoms and my own hospital trips over the last year and no answers yet. I hope you're able to get some answers

      • teiovex

        681d

        @inflamedfuturern you too ❤️

    • JennyPenny

      681d

      I gone thru this. Wanted to die.

      • teiovex

        681d

        @JennyPenny I definitely feel it. so happed there’s an “-ed” at the end though ❤️

        • JennyPenny

          680d

          @teiovex I still want to die :x But less immediately

    • MooieModer

      681d

      🎉 your selfadvocacy.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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