Mer7

188d

Has anyone here had a decompression surgery? I'm scheduled to have one soon and I'm not sure what to expect..

Arnold-Chiari syndrome

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  • Maryoochki

    188d

    No but how do u know when it's needed

    • Mer7

      188d

      I have a MRI study showing the CSF flow wasn't getting out of my skull, so I was told I need it.

  • Nesta

    188d

    I have had one. What questions do you have?

    • Mer7

      188d

      What was your recovery like?

      • Nesta

        188d

        it was rough and a very atypical recovery. I spent a week in the icu a week in step down and a couple of weeks in rehabilitation, and months of PT and OT. I was in unbearable pain and could barely move or do anything. I ended needing a shunt a month later and since then things have been so much better.

  • Mimi_Jewell

    188d

    I got the patch put in my head

    • Maryoochki

      187d

      how did u know u needed it

  • MedicalAnomaly

    187d

    I had the decompression with a dura graft. What are your questions?

  • Tmac821

    185d

    Following in the same boat waiting for neurosurgeon appt

  • Katy80

    184d

    I was decompressed in 2019. It gave me my life back after I stopped being able to walk or talk normal due to blocked csf flow. Recovery was a bear, but bit by bit I got back to my normal self. I would say it took a year to fully recover but at about 6 months post op I was back to 90%of my normal activity.

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