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698d
Has anyone here had a decompression surgery? I'm scheduled to have one soon and I'm not sure what to expect..
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Arnold-Chiari syndrome
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694d
I was decompressed in 2019. It gave me my life back after I stopped being able to walk or talk normal due to blocked csf flow. Recovery was a bear, but bit by bit I got back to my normal self. I would say it took a year to fully recover but at about 6 months post op I was back to 90%of my normal activity.
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696d
Following in the same boat waiting for neurosurgeon appt
697d
I had the decompression with a dura graft. What are your questions?
I got the patch put in my head
@Mimi_Jewell how did u know u needed it
I have had one. What questions do you have?
@Nesta What was your recovery like?
@Mer7 it was rough and a very atypical recovery. I spent a week in the icu a week in step down and a couple of weeks in rehabilitation, and months of PT and OT. I was in unbearable pain and could barely move or do anything. I ended needing a shunt a month later and since then things have been so much better.
No but how do u know when it's needed
@Maryoochki I have a MRI study showing the CSF flow wasn't getting out of my skull, so I was told I need it.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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