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im wondering about others experiences with chiari 1 malformation, who possibly also have syrinx and the decompression surgury! i had scoliosis since the age of 4 with an incompitent doctor that only focused on that and none of my other symptoms that lead to chiari until we switched and contacted a neurologist when i was 9 who got me an MRI and discovered the syrinx was so bad if they hadnt caught it as late as they did id be paralized right now, and so i had the decompression surgury and by the time i was 11 the scoliosis was gone and now (im 18) the syrinx has shrunk to the point of not posing a threat anymore and i didnt have to get them drained :)
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Generalized pain
Arnold-Chiari syndrome
Memory Loss
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803d
I’ve had decompression surgery.. I was in my 40’s and it was the worst. I’ve had a total of 8 brain surgeries from a ruptured brain aneurysm back in 1997. I had to quit two jobs I loved because of my memory problems and pain. Taking med marijuana which helps immensely with pain and sleep. Gave up my drivers license too because of my health.
I’ve had the Chiari surgery. And she wants you to fusion. Do you have anyone you’re going to see? I would recommend Dr. Fraser Henderson in Silver Spring Maryland. He’s the best of the best
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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