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pinkp0p
2y ago
Looking for experiences with Chiari 1 Malformation and Syrinx
im wondering about others experiences with chiari 1 malformation, who possibly also have syrinx and the decompression surgury! i had scoliosis since the age of 4 with an incompitent doctor that only focused on that and none of my other symptoms that lead to chiari until we switched and contacted a neurologist when i was 9 who got me an MRI and discovered the syrinx was so bad if they hadnt caught it as late as they did id be paralized right now, and so i had the decompression surgury and by the time i was 11 the scoliosis was gone and now (im 18) the syrinx has shrunk to the point of not posing a threat anymore and i didnt have to get them drained :)
Your answer
Bulbous
2y ago
❤️
Bulbous
2y ago
I’ve had decompression surgery.. I was in my 40’s and it was the worst. I’ve had a total of 8 brain surgeries from a ruptured brain aneurysm back in 1997. I had to quit two jobs I loved because of my memory problems and pain. Taking med marijuana which helps immensely with pain and sleep. Gave up my drivers license too because of my health.
Danlosdude
2y ago
I’ve had the Chiari surgery. And she wants you to fusion. Do you have anyone you’re going to see? I would recommend Dr. Fraser Henderson in Silver Spring Maryland. He’s the best of the best
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