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408d
Hi everyone! I've been dealing with pain and weird allergies for most of my life, but very recently discovered I have the EDS/POTS/MCAS trifecta. Basically just dealing with lots of pain, dizziness, and too many allergies! I'm hoping to find a community and maybe some advice. 😊
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Allergy
Generalized pain
Postural Orthostatic Tachycardia Syndrome (POTS)
Ehlers-Danlos Syndrome (EDS)
Naltrexone
Dizziness
Mast cell activation syndrome
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338d
Welcome friends!
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394d
are you on allergy medication daily??
393d
@lola_ yeah, just Zyrtec (generic)
@RainbowNarwhal oh for my pain im also taking low dose naltrexone and its been life changing for me. i've tried literally everything else for it and nothing else helped nearly as much as this. my pain doc said that people w eds respond well to LDN. but some doctors aren't educated on it and therefore wont prescribe it
@RainbowNarwhal oh awesome me too. my allergist said up to 4 zyrtec a day is alright. just making sure it wasnt Benadryl or anything since it has risks and such
406d
Hi, here for anything you need
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407d
Is it okay if I also dm, as I have a lot of questiobs
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@Achilles22 sure!
Welcome to the bendiest, itchiest, dizziest club you never wanted to be in. ❤️ My dms are always open for EDS questions.
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Hello, feel free to message me anytime!
Welcome! Feel free to message me anytime!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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Many people with the EDS/POTS/MCAS trifecta have shared their experiences and found support in online communities. Some helpful tips include staying hydrated, using compression socks, managing allergies with antihistamines, and working with knowledgeable healthcare professionals. Connecting with others who share similar experiences can provide valuable insights and encouragement.
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