See Alike in...

Alike App

Browser

RainbowNarwhal

408d

Hi everyone! I've been dealing with pain and weird allergies for most of my life, but very recently discovered I have the EDS/POTS/MCAS trifecta. Basically just dealing with lots of pain, dizziness, and too many allergies! I'm hoping to find a community and maybe some advice. 😊

Top reply
    • Bijoux_bean22

      338d

      Welcome friends!

    • Bijoux_bean22

      338d

      Welcome friends!

    • lola_

      394d

      are you on allergy medication daily??

      • RainbowNarwhal

        393d

        @lola_ yeah, just Zyrtec (generic)

        • lola_

          393d

          @RainbowNarwhal oh for my pain im also taking low dose naltrexone and its been life changing for me. i've tried literally everything else for it and nothing else helped nearly as much as this. my pain doc said that people w eds respond well to LDN. but some doctors aren't educated on it and therefore wont prescribe it

        • lola_

          393d

          @RainbowNarwhal oh awesome me too. my allergist said up to 4 zyrtec a day is alright. just making sure it wasnt Benadryl or anything since it has risks and such

    • Zebragirl

      406d

      Hi, here for anything you need

    • Achilles22

      407d

      Is it okay if I also dm, as I have a lot of questiobs

      • Magpie42

        406d

        @Achilles22 sure!

    • Magpie42

      407d

      Welcome to the bendiest, itchiest, dizziest club you never wanted to be in. ❤️ My dms are always open for EDS questions.

    • Hamie

      407d

      Hello, feel free to message me anytime!

    • Alfubet

      407d

      Welcome! Feel free to message me anytime!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Many people with the EDS/POTS/MCAS trifecta have shared their experiences and found support in online communities. Some helpful tips include staying hydrated, using compression socks, managing allergies with antihistamines, and working with knowledgeable healthcare professionals. Connecting with others who share similar experiences can provide valuable insights and encouragement.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion