Looking for others with POTS or EDS

Hey! I just joined this and I have similarities to you. I was wondering if you also have pots or eds? I'd love to have other people to talk to about it.

Your answer

Campbell

2y ago

I have POTS, and other autoimmune diseases. I hate telling doctors I have POTS, because they automatically go to marajuana. It’s an unfortunate acronym. I can’t take marajuana because it makes my heart race, off the charts! I’ve resorted to calling it Tachycardia Syndrome.

Molls

2y ago

I do! I have POTS, EDS, MCAS, and have a port for hydration

Opal

2y ago

Hey!! Know I have POTS and am getting close to an EDS diagnosis rn… been curious and asking people how they separate the symptoms to their cause. Like what’s the line between pots and EDS?? (I know their are different kinds: I have hyper POTS and suspect hyper mobile EDS)

CT1409

2y ago

I've got both! And a bunch of others! 💙

Nightshade

2y ago

Same, both plus others!!

AeL

2y ago

Welcome 👋 I have both plus others.

McNic

2y ago

I have both together it's not the most fun but you learn your own special ways to cope

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.

About Alike Wisdom Blog FAQ Editorial Team All Conditions All Posts All Communities

Your Privacy Stories Community Guidelines Terms of Use Privacy Policy Helplines Contact Us Group Chats Guidelines