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Looking for fellow zebras with POTS and EDS

Skielyr

762d

Hi! I'm new here and looking for others with POTS and EDS. Where are all the zebras at? 🥰

10

13

13

Gastroparesis

Postural Orthostatic Tachycardia Syndrome (POTS)

Anorexia

Chronic Abdominal Distention

Psychogenic non epileptic seizure

Chronic Pain

Cardiac Murmurs

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Top reply
    • Weeble_Wobble

      754d

      I have POTS and suspect EDS. ❤️ 🙏 hello. I’m new to the app too.

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      Reply
      Chat
    • Weeble_Wobble

      754d

      I have POTS and suspect EDS. ❤️ 🙏 hello. I’m new to the app too.

      0

      Reply
    • Skielyr

      755d

      Hello everyone! Thanks for the welcome. 🥰

      0

      Reply
    • Giraffa

      757d

      I have both! ✋

      0

      Reply
    • Liddy

      757d

      EDS and just diagnosed with POTS

      0

      Reply
    • SJP

      757d

      I'm POTS + Joint Laxity + Hyper mobility, but not diagnosed EDS. 👋🏻

      0

      Reply
    • hazyeclipse

      758d

      I have POTS. Pretty sure I don't have eds, don't meet the criteria, although I'm hypermobile in some places

      0

      Reply
    • Bijoux_bean22

      758d

      EDS, POTS, MCAS, Gastroparesis and chronic pain. Always happy to chat! <3

      0

      Reply
    • AweGeez

      759d

      I’m new here as well! Living with POTS for 3 years now

      0

      Reply
    • Mimi21

      761d

      Right here! 🦓 EDS, POTS, MCAS and chronic migraine

      0

      Reply
    • LoveLuna

      762d

      POTS 🙋🏼‍♀️ I see a lot of people in my support groups with both, but I don’t really know what EDS is. what are your main symptoms from EDS?

      1

      Reply
      • Skielyr

        762d

        @LoveLuna I also am getting an echo for a new murmur

        0

        Reply
      • Skielyr

        762d

        @LoveLuna for me symptoms are hypermobility causing pain and dislocations/subluxations, seizures, and GI issues causing lack of appetite, then ravenous appetite when I have a reprieve.

        0

        Reply
    • Emrys.the.warrior

      762d

      Not confirmed yet but I’m in the process of getting tested for both ☺️🦓🧂

      1

      Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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