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Skielyr

786d

Hi! I'm new here and looking for others with POTS and EDS. Where are all the zebras at? 🥰

Top reply
    • Weeble_Wobble

      779d

      I have POTS and suspect EDS. ❤️ 🙏 hello. I’m new to the app too.

    • Weeble_Wobble

      779d

      I have POTS and suspect EDS. ❤️ 🙏 hello. I’m new to the app too.

    • Skielyr

      780d

      Hello everyone! Thanks for the welcome. 🥰

    • Giraffa

      781d

      I have both! ✋

    • Liddy

      781d

      EDS and just diagnosed with POTS

    • SJP

      782d

      I'm POTS + Joint Laxity + Hyper mobility, but not diagnosed EDS. 👋🏻

    • hazyeclipse

      782d

      I have POTS. Pretty sure I don't have eds, don't meet the criteria, although I'm hypermobile in some places

    • Bijoux_bean22

      782d

      EDS, POTS, MCAS, Gastroparesis and chronic pain. Always happy to chat! <3

    • AweGeez

      783d

      I’m new here as well! Living with POTS for 3 years now

    • Mimi21

      785d

      Right here! 🦓 EDS, POTS, MCAS and chronic migraine

    • LoveLuna

      786d

      POTS 🙋🏼‍♀️ I see a lot of people in my support groups with both, but I don’t really know what EDS is. what are your main symptoms from EDS?

      • Skielyr

        786d

        @LoveLuna I also am getting an echo for a new murmur

      • Skielyr

        786d

        @LoveLuna for me symptoms are hypermobility causing pain and dislocations/subluxations, seizures, and GI issues causing lack of appetite, then ravenous appetite when I have a reprieve.

    • Emrys.the.warrior

      786d

      Not confirmed yet but I’m in the process of getting tested for both ☺️🦓🧂

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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