hi, I’m Em and I’m 23. I have hypermobile ehlers danlos syndrome and in October POTS symptoms hit me like a truck. I have an amazing PT who has the trifecta (EDS/POTS/MCAS) and she’s been helping me along the way. I finally have my specialist cardiology appointment (after 2 failed cardiologist attempts) and I’m so nervous, but excited. Anyways, I wanted to ask y’all about your experiences with POTS and what helps you the most? No one else in my life, other than my PT, has EDS, let alone POTS and it’s so scary. Hearing other people’s stories helps so much for a newbie Take care and be well ❤️
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