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Future_Dr._Zebra

2y ago

Connecting with Others with MCAS, EDS, and POTS

Hello lovely people!! Hoping to connect with others who have the terrible trifecta of MCAS, (hypermobile) EDS, and (not yet diagnosed) POTS ✨ Let’s help heal each other 🙏

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Pixxy

2y ago

✋Me too hun. Singing to the choir. Do not let anyone, doc's or others ,tell you, ....you are over reacting, you are not as sick as you think, or my fav....you look like you feel fine. Pssst just because I can lick my elbow and kiss my knee caps doesn't mean I am healthy! 1. You know your body....and 2. doctors work for you. Never forget those things. Gentle hugs my new zebra.
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BunToaster

2y ago

Another trifecta here! I'm still in the process of finally being officially diagnosed (not the best Healthcare where I live so the tests ruling out other mast cell issues is taking forever) but my pcp is convinced I have it.
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PolkaDot77

2y ago

Hello! I also have the trifecta, oh what fun! Sometimes all I can think is how much of a train wreck my body is, but I manage to make it through the day. Some days it forces me to stop and smell the roses, or sit in the weirdest places, those days I'm occasionally thankful for it. It's helped me be the patient, empathetic person I am today.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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