Looking for people with abdominal migraines

Hey! I have them. I kind of had a similar experience. I started having them my freshman year of highschool and they were practically everyday. I felt terrible constantly vomiting and feeling like my stomach was going to explode and missing so much school. I lost over 30 pounds purely from vomiting and I kept going to different doctors for about 2 years and each time they would tell me they didn't know what was wrong with me and ask me if I was faking it and really just had an eating disorder. It took me 2 years to finally be diagnosed and get on medicine that actually helps me. I hope that you don't have to wait nearly as long to get diagnosed though

Also not diagnosed but in the same boat

I was diagnosed very quickly when I was 20 and hospitalized because I had an episode so bad it burned my esophagus and I couldn't breathe 😅 I told them I'd been having problems like that since I was about 15, and they asked if I had chronic migraines and weren't surprised when I said yes, although it did throw them off when I said I've had the SAME migraine since I was 15. I got a diagnosis of cyclic vomiting syndrome/abdominal migraines and asthma and a few new medications that night

I used to get them all the time when I was younger. I still get them maybe once or twice a year but they are the absolute worst

I just got diagnosed with abdominal migraines. No pain but 2 days of vomiting every month when I get my period.

Unfortunately abdominal migraines are a differential diagnosis, so there's no way to test for it. Tests and scans can be done to eliminate diagnoses, but that's about it. If you have a history of brain migraines, that tends to indicate abdominal migraines if your GI symptoms line up with when you get migraines

It’s the same with me! I wound up seeing a gastroenterologist instead of a neurologist for a diagnosis

I have them they feel like sharp pains to me had to go to a specialist to get diagnosed though

Its the same with me!! They arent sure whats actually wrong but this is just the most similar to what ive experienced so they diagnosed me with abdominal migraines!

👋 I have them! migraines alone and anything with the stomach is hard to diagnose. And there is no test to diagnose abdominal migraines. I think it’s categorized as 5 or more severe pain bouts (in or around the belly button) you also are to it own advocate, if you think that’s what you have even if it’s draining and hard and continual keep bringing it up to doctors that that’s what it is until they listen and persue that route