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Struggling with Undiagnosed Symptoms for 3 Years

Trulyloved

441d

Good evening guysšŸ‘‹šŸ½. Iā€™m approaching 3 yrs of seeing specialists & multiple hospital visits. My cardiologist told me last year that I have symptoms of pots but will not diagnose me. She insists that I am just out of shape. Prior to my symptoms, I was working out/ strength training no less than 3xā€™s a week. I havenā€™t been able to work consistently or support myself. Iā€™m barely getting through the day. In the beginning of 2021, I was put on propranolol 3xā€™s a day but the side effects were not worth it. I had constant migraines, hives, and could not stay awake. Now my doctor prescribed be metoprolol and I just find it concerning that I have no diagnosis but drs keep gaslighting me and prescribing meds with no diagnosis. My health has completely stopped my life. I had to stop my college classes, work, love life, etc. If anyone has any suggestions or encouragement that would be really great right now. Iā€™m trying to stay encouraged but at this point Iā€™m out of resources and it feels like Iā€™m out of faith.

1

11

11

Propranolol

Tachycardia

Recurrent Syncope

Urticaria.

Abnormal Weight Loss

Metoprolol

Postural Orthostatic Tachycardia Syndrome (POTS)

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Top reply
    • FS_cookielove

      406d

      @Trulyloved you can see if they have an online option if you're done with tests and diagnosis. They can sent blood tests to a nearby facility although tests to diagnose should be taken with the provider.

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    • FS_cookielove

      410d

      I'd ask for a HUTT test (helps to diagnose pots) and if she says no find a new cardiologist

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      Reply
      • Trulyloved

        409d

        @FS_cookielove Thank you! Iā€™ve had a tilt table test. My cardiologist who administered the test said results came back negative. I sent the same test results to the Cleveland clinic and they said my result was positive because I passed out. Safe to safe Iā€™ll be moving forward with Cleveland clinic. Itā€™ll be harder to travel to but I just need answers/ solutions. Thanks again

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        Reply
        • FS_cookielove

          406d

          @Trulyloved you can see if they have an online option if you're done with tests and diagnosis. They can sent blood tests to a nearby facility although tests to diagnose should be taken with the provider.

          1

          Reply
    • Zemi

      439d

      I was told I was deconditioned or dehydrated. I humored them by doing everything they wanted to try and prove they were right. Well after no improvement, it was obvious they were wrong and I got my POTS diagnosis

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      • Trulyloved

        410d

        @Zemi Geesh. Thatā€™s crazy. Iā€™ve done the same. Worked out again consistently, increased my water intake, drink gatorades & lick saltā€¦ still no improvement. Just time passing of me feeling like Iā€™m fighting for my life majority of the day. Thank you for sharing

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    • Trulyloved

      441d

      Also, does anyone experience constant shortness of breath or trouble breathing?

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      • Juno2191

        439d

        @Trulyloved I do, on exertion specifically

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    • TunaGoon

      441d

      Sounds like pots or another kind of dysautonomia it's odd she won't diagnose you. Definitely go see someone else. In the meantime you could try extended release propranolol if you're willing to try it again. Then its just once a day. I had similar problems at the beginning but changing to XR made it all go away. You may want to check out MCAS and see if that sounds like you. Sometimes gentle cardio can help. My lifesaver has been salt stick capsules (without caffeine) and cutting out caffeine. Good luck!

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      • Juno2191

        439d

        @TunaGoon if cardiology refuses to diagnose (as it did for me), it may be worth looking for a POTS specialist. I couldn't get diagnosed until I went to a dysautonomia specialist because all of my other docs said "not my problem" or "it's in your head"

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        • Trulyloved

          410d

          @Juno2191 Thank you!

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      • Trulyloved

        441d

        @TunaGoon Thank you! I will mention it at my next appointment & Iā€™ll look up MCAS tonight. Thanks again! I appreciate it.

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        Reply

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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